PF,
My heart is breaking for all of you too. Children often outgrow Tourette syndrome after adolescence so we will pray that if this is what your GS has, he may ourgrow it. My only GS is legally blind so I understand how hard it is to accept what life throws our way at times.

I only know of one person with tourettes and he is in his 30's, married with two little girls. He has overcome letting this run his life and does very well. When he comes in I act like I don't even hear it.

I think it would be great if there is a support group he could join. It has to be so hard on this little guy just changing so fast and if we don't understand, we know why he's doing what he is. Sounds like he is embarrased. Is he still going to school or has he been out since this started? Oh PF my heart aches for all of you.

Please come here and talk about it with all of us. Communication is one of the best therapies and we CARE.

PF we need to remember God does not put us past our test.
On my first Mothers Day, I lost my first son and thought that my life would end. With the help of others I'm still here going strong. It's been 34 years this Dec. Not easy, but it's the life that was chosen for me.

You still have your darling little GS so give him all the love and support you have to offer and he may end up being The President one day. Sharing your sadness and sending love and prayers your way. We Love You.

Punk

Oh Bebe, I just wept when I read your post. I am just so very sorry your little guy is having to go through this! My heart goes out to him, you, and the entire family.

I know very little about this type of disease, and had never even thought about children having it until now!

Punk has shared some very encouraging words, so we can pray that he will outgrow it. If not, it sounds like he can still lead a good life with the help of medications and lots of love and understanding from family and friends.

Punk, I'm so sorry you have dealt with such a devastating loss. I can only barely imagine the pain you went through. My son was badly injured once and I was so very scared that he would not make it--think I would have lost my mind if he hadn't. But you are so right--we somehow make it one day at a time and gradually learn to deal with things.

Bebe, I wish I could wrap my arms around you and we could cry together. I know your heart is aching and you are in pain because you would spare him this if you could. Just know that I will be praying hard that this will only be a temporary challenge and will have a happy outcome.

Feel free to come talk anytime you can--perhaps you can educate us a bit and it will help you sort out your thoughts and feelings too. I know you may not be in the mood to post much, but please do let us hear from you once in awhile--I will worry about you if you don't.

Be good to yourself, and go out and soak up a little of your Florida sunshine each day--I think it helps lift the spirit and give us hope.

Hugs,

Luvs

Oh Bebe...I'm so sorry to hear this news. What a terrible thing for that little guy to have to deal with. Having things out of your control is so scary. I've never known anyone with this problem. I so hope ya'll can find the information and help that he needs. I'm sure there has to be some help. I think it would also help him to find other children with the same thing happening. I too hope it is something that he can control with medication or that he will outgrow. ((hugs)) to you and your family. Of course we will be here for you if you need to talk or vent or cry to someone. I know we will all be sending up prayers for all of you and I will now keep my ears open for any help to send your way! Love ya girl! ~Anj

Oh.. I am so sorry for what your dear GS must be going through. I do not know what to add, to what Punk, Luvs and Ang have said so beautifully. Just know that my heart and thoughts are with you and your family.

Joan

Thank you all for your blessings. My little GS is doing much better. He even went with his Poppoo to the bookstore tonight and bought a Bible - "A Bible for Boys". I didn't even know they wrote one of those. His outbursts have subsided since he is on meds. But we were told his blood test came back with abnormalities and he had to have another one. He was so brave, he went right in and didn't complain - normally he would have a fit. It took four nurses to give him a flu shot just three weeks before this all started. I ask very little from God, just to keep my family safe and healthy. I have never asked for wealth or anything frivolous - just to take care of my family. My first thought when I got over the initial shock was that he wasn't dying so be grateful. There are others who have it much worse.

Tourettes is a brain misfire which is suppose to be inherited (we have no one on either side of the family with this) and is diagnosed mostly in boys between the ages of 7 and 10. Normally it is just tics that most people don't even notice, blinking of the eyes, twitching of the nose, shrugging shoulders, etc. Then there are the vocal tics, repeating the same words or repeating what someone else has said, cursing, short ear piercing scream, barking, snorting, etc. When the vocal tics start most children are so shocked they get scared and don't know what to do. My GS didn't want even the garage door to be open because he was afraid someone would hear him. This was a funny outgoing little guy who loved being outside with the others playing. He is a practical joker also. But for the past few weeks he would run from the car to the house with his jacket over his mouth. When they went to pick up his twin brother from school, he got down in the floor board of the car so no one could hear him if he screamed. So today for him to go to the store was amazing. Then he came home and taped the handle of the water sprayer at the kitchen sink so when Poppoo went to wash his hands he was sprayed - he laughed so hard when we heard Poppoo holler and then came around to the family room with his shirt soaked. It was good to see him laugh again.

With all the mean hurtful people in this world, children should not have to carry any kind of burden.

These twins are a miracle for my daughter. She tried to get pregnant and because of endometriosis, she couldn't. So they tried Invitro Fertilization. Now being the type of people we are - very controlling - she read everything she could about Invitro. She found the doctors at Stanford were letting the eggs fertilize for five days vice three days and had better success at implanting. So she went to her doctor and asked that he try this technique on her. She was the first patient of his to have this done. And it worked!! We all cried when we found out she was pregnant on the first try. Then when the ultrasound showed that only one of the two eggs implanted took we were still thrilled. Then the next ultrasound showed that one egg split and we had identical twins - well this had never happened to this particular doctor before. I am not sure who was more excited - him or us. She has since tried with the remaining eggs but it just wasn't meant to be. She is totally happy with these boys and is a great mother.

Punk, I can't even imagine what you went through with the loss of a son. You must have a tremendous amount of faith and I admire you for it.

Again, thank you all for being there. It is 2 am and I guess I should get to bed. Will post over on the othe side about the craft show I did today.
B

Bebe, thanks for the update. I'm so glad he got the medication and that it is helping. I will continue to pray that it is only temporary. This has to be so hard for anyone, especially someone his age. Loved hearing the story of the twins, I know they are a blessing to all of you. Luvs

Bebe.....Wow.....I do believe in the saying, "God does not give us a burden we can not carry" but this has to be a close one!

He is very lucky to have parents and grandparents who not only love him but take the time to check out the facts. So very glad to read that the meds are helping and I sincerely hope that he has no reactions to them.

I can not even imagine what it must be like for him in school. I remember school assemblies to explain special needs children and why we needed to help them and not make fun of them, it still happened. I just hope that kids are kinder and more understanding now.

Many Hugs and Prayers to you and yours,

Claudia

B, It's so wonderful to come here and read that life is a little better. What wonderful stories and all will work out. I'm sure he will return to himself soon. He sounds like a little character that has it in him to over come this so we'll pray that he does.

We will all be here when you need us and please keep us updated as time goes on.

Love and Prayers, Punk