Someone help me!!!

Hi and I hope someone else can help me with this cause my GP and Neuro doc sure arent much help.. I know I am having symptoms of peri or what ever they call it. lol But Has anyone ever had Eye symptoms such and total blurred vision. numbness of the mouth and jaw pain during all of this? It seems I am going nutty. Totally frustrated to say the least.These spells can come at anytime anyplace. Sometimes it feels alittle like I need to refocus my eyes and others are so bad I cannot even see straight. Double vision at 60 mph is not a good thing! The Nuro doc I saw said to just ( GET THIS) SET BACK AND ENJOY THE RIDE!!!! Oh ladies I tell ya I wanted to let him enjoy this ride just once! lol. In making light of the situation he actually told me today well it was a woman who ate the poison apple!!!! I told him I wish a man could go thru this just once and maybe they would understand alittle better how I felt! My GP put me on Nerotin in hopes that it wold help with what they are calling migraines and so far no help from that so he changed my meds today to something called topamax. Has anyone ever had these symptoms and did you find anything that actually helped? PLEASE HELP ME

Hi figittts,
I think I answered some of your questions in another post somewhere. My memory is shot!
Did the neuro doc do any tests? Do you have a history of migraines?
Your neuro doc sounds like a jerk.
In my opinion, Neurontin should be used on people who have intractable nerve pain. did your neuro doc bring up the usual migraine meds? Topomax is one of them, but there are many others.
I would want to make sure that your facial/eye/jaw symptoms aren't something else.......like M.S., a vascular problem, etc. So hopefully, he's doing an MRI on your head.
Also......some of these symptoms could be from TMJ......tempomandibular joint disease. Do you grind your teeth at night?
Another thing I ran into, beginning in perimenopause was sleep apnea. How are you sleeping? Do you have anyone who can tell you if you snore alot?
Don't you just hate jerky men docs are so insensitive?
I think I told you in my other post to you that my migraines went away when I was put on a beta blocker.
I think I had the worst perimenopause ever.......so you have my sympathy and empathy!

Yes my Gp did a MRI and they ruled out MS. I have had blood work to no end and every test they run comes out fine. I do not snore but I do have some tmj. Nothing so bad as to cause all of this tho. When these spellls hit me and when they hit me hard I have no choice but to come home and go to bed. Usually sleep makes them somewhat better for that day altho I tend to have a mild headache the next day. I have been having flashes of light for a couple years now and small dizzy spells as well. It seems that they have only progressed. I went 8 months without a period only to have them come back. They did the hormone test on me. I guess my gyn said if it was like 21 or higher you were in full bloom. well mine was like 76 lol.. not to much longer later I started my periods again lol. The hot flashes got worse etc etc etc. AND YES MEN DOCS ARE JERKS!!! so for now I will rely on this forum to try to keep me from going completly insane. My husband is very supportive but I know he is getting very frustrated as well. I took my first dose of the topamax last night and my gosh I barley slept. I had tingly sensations in my arm and face. The doc and pharmasict warned me that this might happen so I ill bare with it for alittle while to see if it goes away. I will put up with this rather than those eye auras anyday tho... Those things litteraly scare me to death. By thwe way I am 48 years old with one ovary already gone.

Hi figittts,
I've answered in your other thread too.
Just remember, if this med doesn't work for you, there are alot of other possibilities. don't give up!
Would you say your health was good before this? Did you have any problems like this before perimenopause started?
I began to have problems around l998. I was 48 then too!
I think my immune system actually started not working so well, because a few years before that, I got a horrible case of influenza, pneumonia, ear infections. I also had 2 sinus surgeries during that time. It was like I was just falling apart!
Then I developed IBS, GERD, horrible migraines, overwhelming fatigue, buzzing in my legs/intestines, chest.
I had every test in the book and saw every specialty of doc there is.
I was diagnosed with fibromyalgia. Who knows what that really is.....
I'm not saying these things to discourage you. I just want you to know that there are other women who have been affected exactly the way you are.
I got an aura once while driving the car, and I had to take my headache med prescription to the drug store, and I couldn't even talk! So I understand what you're going through. (if that helps at all).
So look up sites on dealing with migraines and see if there are things in your life you can modify, to keep them at a minimum. Hang in there with the migraine med, and if you can't get used to the side-effects, try another one.
I took Maxalt........which I would only take as soon as my vision got weird. I would hate for you to be on a medicine every day for something you only need occasionally.

Well it has been alittle over a week now since I started the topamax and so far only a couple small eye auras and a small headache.. I started a good womans multi vitamin a couple days ago hooing it would take away the tingling affect of the meds. Boy is that side affect irritating at times.! I have found that stressful situations also seem to bring on some slight dizzy spells. I do find myself extemley exghausted some days. . Other days I can be fine one minute and then bam total without energy the next. God help me get over this soon!!!!!!!!!!!!!!

Hi figitts i to get some crazy eye auras going on from time to time and yes it really is very scary i get like a weird swimming circle around my eyes that lasts for ages it only comes occasionally but its never happened to me b4 i started with peri i alsso get little black dots as well as though ive got sumthing in my eyes i just sit and calm myself with the fact that i know it wont last long and thankfully it does eventually stop and my eyes return to normal focus but it is a scary thing i thankfully do not get headaches with it just the blurrd vision hang in ther it cant last forever

Hey beauty, how long have you been having these things? Mine started in Feb and I didnt get the headaches then either. But then the headaches started. they started out bad and then they were mild ones then wham they got really bad. What scared me the most was I started having them when I was driving. The i got these wierd numbness things going on on my mouth and down my throat. then usually later on I would have the eye thing. Yes I have black floaters alot too. I went to the eye doc and had my eyes checked cause my mother has macular degeneration and I was worried that I might have had the beggining symptoms of that but they said I was good on that. Thank god. So now I am just setting back hoping these things will calm down enough that I can go back to riding my harley. Good luck with yours. How old are you and how long have you been having these things. Have they told you yours were menopause? did they give you anything to try to help with them?

Hey figittts i have been having these auras since about 7 months ago ive had 3 bouts so far i havent had them checked out but if they become anymore frequent id get them checked out the black floaters i get daily they dont bother me so much but the auras freak me out im so releived when it stops it stops as suddenly as it begins its really a weird freaky feeling makes me panic to be honest,im 46 i had a hysterectomy at 30 left with 1 ovary i know im perimenopausal my doc agrees with that she wanted me on hrt but i didnt want to do that i get savage heart palpatations as well but ive found a cure on my own for that but that freaks me out more than anything to be honest i wasnt prepared for all these horrible symptoms i get weird aches and pains horrible adrenalin rushes hot sweats feelings of total panic the list is endless but ive decided to try to manage on my own with various vitamins and i think ive pretty much got most of it under control now but when my eyes start i think im going blind but since its happened a few times now i talk myself down with well its happened before but it does stop i think its a nerve thing and hormones seem to affect every nerve in our bodies so hang in there and i hope youy get to ride your harley real soon ok chin up as we say here in GB

Hi figitts,
I have just read your last post and wanted to let you know that I too get the weird numbness thing in my mouth and throat and i also get the the floaters in my eyes. I have decided to go and get my eyes tested cos my mum also has untreatable macular degeneration and I'm scared I might also get it(although I know it's not hereditery). I am 49 and have had lots of symptoms for a long time. my GP doesn't believe that all the symptoms I have are menopause related! He put me on HRT for the hot flushes but I came off it when it put my blood pressure and cholesterol sky high. I regularly talk with beauty2009 and it helps to share everything we're going through. Take care.

Hi ladies. Well it seems that I have good days and bad days. I had three good days with no symptoms at all them BAM here we go again. I keep having to refocus my eyes. The auras are not so bad now with the meds the Nuro doc put me on but I did back down to one pill in the evening as they made me have more blurred vision more so throughout the day taking two pills. I did start the multi vitamin and so far it did seem to help with the tingly feelings from the side effects. I think stress is really playing a big role in these things as well. If I get stresses out at work it seems I get to feeling kind of fuzzy in the eyes if that makes any sense and i have to keep trying to refocus. But when I cannot talk my self out of it ( Like today) it just seems to go full blown into a migraine. Lack of sleep seems to aggravate it as well. soooooo now I seem to be figuring it out alittle so now I have to try to make some adjustments and see if I can work out some more of these so called triggers and work on them some more. I go back to my nurologist some time in september but I may end up calling him before then and asking him for some other type of migraine meds that i can take when these so called migraines take hold and I cannot shake them. As for the eye auras. I hope I do not have any more of those like I did a couple weeks ago. That literally scared the life out of me. good luck to you all. I check in from time to time so keep those hints and helps coming. It really helped me to deal with this knowing that I am not the only one going thru this.

Hi figittts how r u doing at the moment i hope your eye auras are claming down now that you have some treatment for them and obviously your attiitude to them is much calmer than when you first came on here i havent had any auras lately but i have had another bout of palpatations which are very scarey i feel soooo tired some days i just have to go and lie down and have a good doze i used to feel guilty about that but i dont anymore i just go to bed for an hour when i need to and try to rest i know im only 46 but boy do i feel it some days there isnt a pattern to all these horrible symptoms i talk to hun49 a lot and that makes me feel much better to know i am not alone i come on here everyday and look forward to talking to hun i always feel better knowing someone is there for me even tho i dont know this lady in person we talk a lot its very nice and comforting she is suffering as we all are and it kinda makes you feel more normal i talk myself down a lot these days so come on have a chat when you need to ok x

Morning Ladies,
Well Sat was a complete mental breakdown for me. I had every symptom I think one woman coould experience throughtout this horrible joke god plays on women( peri). My poor husband just sat and looked at me and told me several times I wish there was something I could do. I asked him if he wanted to trade places with me for just one day and he got this really scared look on his face and said NO. lol.. Sundy was better tho. We got on the harley and went for breakfast which has become a sunday morning ritual for us lately, and when we got inside the restaurant wham I had a eye aura. Had to set down for a few minutes until it passed then the rest of the day was just some annoying tingling and some of that funky taste stuff in the mouth. Hey I actually got the guts to get on my own Harley and ride a few miles. It felt so good to actually do this. I was very cautious not to go to fast just in case one of those darn things took ahold . I was at a speed that I would be able to make a quick stop and be comfortable doing so. I am calling my female doc today and see if she can help me out with anything as the meds the nuro gave me apparently are not working since I am now seemingly starting to have the eye auras again. I am not going to take this med which actually makes my other symptoms worse it seems. God knows I dont need meds that makes them worse. You ladies try to hang in there today!

Hi, I'm new here but... Have you considered going to an eye doctor? Maybe even an optometrist, not necessarily an ophthalmologist, could tell you what is going on. Given that things like detached retinas can jump up quickly and bite you, I'd see no harm in asking (beyond the cost of the visit, that is). I'd rather see a few more doctors than take a few more meds.

And jaw-related symptoms... that can be a symptom of cardiac problems in women, can't it? Maybe the GP needs to rethink what specialists are being consulted here. And the tooth grinding thought is probably a good one - dentists can be remarkably helpful in diagnosing head-and-neck symptoms.

I always like to shop for a diagnosis before buying anyone's treatments.

KarinL

Hey figittts how much better do you feel!!! you have been out on your harley go girl thats great and how lovely is your husband he sounds like he really cares a lot about the way you feel hun! jaw related symptoms are very common in peri i know at least 5 women who have tingling aching jaw problems im one of them i also get a horrible taste in my mouth and my sense of smell is very acute sometimes i also get palpatations and breast pain in fact ive had ekg s twice nothing wrong there and my bp is fine so i dont have a heart problem but i do have palpatations and i am peri i dont have breast cancer but i do have an armpit swelling and breast pain at certain times in the month but i am peri my teeth are a constant problem but i hate the dentist and cannot get a decent one here in uk anyway i get eye auras occasionally but i dont have detached retinas tho i do need glasses for reading its age hormones and that is what it is chick at least you are sorting it out in your head if you can come to terms with whats happening and feel like your not gonna go blind because if you was you would be blind now im sure keep riding your harley keep your chin up take care and speak anytime you like im on here everyday it makes me feel better to talk ok shelly

Hello Ladies,
To answer a couple questions. I have been to the eye doctors and no problems at all with my eyes. Except that I needed a new script for my glasses. This made now difference. They did all the tests with my eyes and everything comes out good. I had a dentist apt the toher day to get my teeth fixed but low and behold my loving husband had another gallbladder attack and ended up in the hopital this time and had to undergo surgery. So for the last few days I have been in the hospital with him. Got him home yesterday morning and then at 3 am they took him back in the ambulance. Wse are back home now and he is resting comfortably finally. Now here is one thing that I find weird. I found that slepp deprivation seemed to bring on these eye auras at one point. well i have had about 5 hours sleep since monday morning and so far so good on the auras thing and the buzzzing in my head has even seemed to stop at this point. All thos theories I thought I had figured out before seemed to have been shot in the rear by my husbands sickness. lol. so much for me figuring out what triggers these darn things for me. I can say one thing tho. it seems that in the past before all of this peri stuff, that I seemed to be better under stressful situations than when not under stress. soooo now at this point with all the lack of sleep and stress of the past few days and no attacks I am wondering if I am just calming down some hormone wise or if this is all going slap me in the face when things calm back down again. lol.

Hi figitts,
Congrats,You have now joined the rest of us and realised that there is no pattern to this crazy business at all!!!lol. I can actually go for several weeks at a time with no symptoms at all and then all of a sudden I'm floored for days. The strangest thing for me has been the exact opposite of you....when I am on holiday I have absolutely no symptoms and that includes the flights and I hate flying. It seems to be the everyday stresses which cause mine.My husband thinks its just an excuse to have extra holidays! Anyway glad everything was ok with the eye specialist. Hope you (and your husband)keep well.

My symptoms disappear when I'm on vacation (including on 12 hr plane
rides) and reappear as soon as I get home. Too bad the Dr. can't prescribe
more vacations...

Hi junegloom I take my hat off to anybody that cope with a flight of 12 hrs i struggle big time with 4 and a half lol i always feel like im not getting enough air on a plane i hope my symptoms disappear this time when i go to turkey in 2 weeks i had a horrible time on holiday in may on holiday panic attack galore im hoping this time ill benefit from my holiday i was actually dreading my last holiday but since ive managed to get a grip of whats happening with me and all the awful symptoms i feel more in control of myself and am actually excited now

Hi Ladies,

Well I went off the topomax. seems like it only made my symptoms worse. I went thru a couple weeks where I felt great. My husband even told me welcome back. lol.. Like I said it only lasted a couple weeks.. Now it seems my headaches are more often sometimes lasting for days instead of hours. my joints and especially my feet are always hurting. I have a very physical job and at the end of the day when I get home I am simlpy out of energy. I am going to my GP tomorrow and ask her to do a Vit D test. and test me for Fibromyalgia. I read up on it and for some reason the one thing that stood out in that article was the dry eye thing and the trouble focusing. I guess like many of you I am still searching for someone to give me a answer other than just assuming because of my age and the fact I am female that this has to be menopause. Hope all of you are coping with this crap that we sometimes have no choice but to call life. lol.

hi everybody does anybody get up one day and just feel like bawling your eyes out ,i have ive been fine for 5 weeks hardly a symptom in sight then wham got up today feeling very fed up irritated upset and no clue as to why my bloods keep coming back normal i dont understand why i feel like this i just want to curl up into a ball

Hi ive started having panic attacks again after not having them for some time the sweats have come back after not having them for a good few weeks and the pain in my armpit ive been having is bugging me to death its kinda moved up to my neck now ive recently had a mammogram and an ultrasound and they seem to think its hormonal does anybody out there have this kind of problem

Hey Beauty, what kind of ultra sound did you have?? I went to another nuro doc and he is running a coratid atery ultra sound on me monday. said he hears some thing in my artery.. I guess we will see monday.. I to was symptom free there for awhile then BAM feet hurting funny feeling in my toungue again. eys are stupid. and aches all over.. This is way to much for us women to put up with lol.. Hang in there we must tho for god made us the stronger sex...

I had an ultrasound on my breasts and armpit because of the pain in my r armpit and r breast but they didnt find anything ominous tho im still getting the pain which they now reckon is linked to hormones weird eh

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