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Anyone here have Graves disease

Posted by carla17 (My Page) on
Tue, Feb 12, 08 at 12:29

Warning. I am not seeking advice. I have discovered there are very strong opinions both ways on annihilation of the thyroid.I am not at that point yet. I found out in Dec. that I have Graves. Would like to hear experiences or stories people have. My eyes are swollen, my hair has thinned terribly. I have had one blood test since I am on Methimazole *sp) and beta blockers. The levels at that time were lower but still too high. I am having blood work and doctor's visit next week.

Thanks,
Carla


Follow-Up Postings:

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RE: Anyone here have Graves disease

I don't, but a friend of mine does, and it was diagnosed in her early 30's. She's been on meds for it for about 12 years now with good results.
Mrs H


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RE: Anyone here have Graves disease

I know the presidents Mom Barbara has it, and Rod Stewart, Oprah did a show on it!


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RE: Anyone here have Graves disease

Is Graves an overactive thyroid? I had it for years before being diagnosed, and stayed on a suppressant medication for a couple of years. After a year or two of normal thyroid, with no medication, it went hyper again. I went back on meds for awhile, then normal thyroid for awhile until it became underactive, where it's been for about 15 years.


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RE: Anyone here have Graves disease

Thanks everyone. Shotzy, I wish I had seen that show. I'm in limbo right now trying to get levels right, almost impossible.
It is an aggravating disease!

Carla


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RE: Anyone here have Graves disease

I have Graves Disease. It was discovered it in '05. I opted for ablation. I was in very bad shape at the time. I could barely walk, lift my arms, my heart was racing constantly, I shook all over. It was bad. The ablation decision was scary, however it was right for me. I needed quick relief. I did swallow nuclear medicine, however symptoms disappeared within weeks. I got some critism from a few people about ablation but my Endo helped me make the decision, and the fact that I was so sick. I am now hypothryroid, which is a trade off, but easier to manage than hyperthyroid. I will take synthroid for the rest of my life. It's an important decision that should not be taken lightly. Investigate your options and good luck finding the one that is right for you.


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