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the big thing on my retina has not gotten any bigger

Posted by kat__wa (My Page) on
Thu, Nov 29, 12 at 0:21

and has not changed in appearance! Had my appointment
Monday with the U of W retina specialist. They still want
to do a biopsy, because no one has a clue what it is. this
doc has done only 5 or 6 biopsies on retinas. Um, I
don't THINK so! So until it changes, we are just watching.
I don't have to go back for 6 months this time!

Follow-Up Postings:

RE: the big thing on my retina has not gotten any bigger

I once had a doctor tell me the best medicine is "tincture of time", meaning some things just take a long time to heal. Not to say, ignore every symptom, but most things do get better on their own. Hope your eye clears up soon!

RE: the big thing on my retina has not gotten any bigger

That's good news. Have you considered getting to a top eye hospital like Wills Eye for a second opinion? Their drs are some of the nation's highest rated. I would never have anything done to my eyes except either there or by one an opthalmologist who trained there (luckily, I live across the river, and most eye drs around here studied at Wills, and almost all of the eye surgical centers are associated with the hosptial). Their website is wonderful for info, as well--you might want to check it out.

Hope you continue to do well.

RE: the big thing on my retina has not gotten any bigger

Very good advice from azzalea, I'm a firm believer in second and even third opinions.

RE: the big thing on my retina has not gotten any bigger

I also believe in second opinions! If they don't know what it is, would they consider referring you to the National Eye Institute (part of the National Institutes of Health)? There is no better place in the world for medical treatment, and it is completely free!

(And if you are lucky enough to get accepted there, you can stay with me while you are getting treatment.)

Keep us posted on your progress, and know that you are always in my prayers.

RE: the big thing on my retina has not gotten any bigger

He says that they would expect it to be my nh lymphoma, or
melanoma. And they are usually either black or white.
Literally, black or white. And mine is gray. He is a
retinal specialist from the U of Washington. If it does
change, I would have to have a biopsy, and I would def. get
another opinion. I've seen 2 retina specialists and
1 neurology oncologist and 1 eye doc. They have never seen
this. lol As my DH says, "you never do anything easy" lol

RE: the big thing on my retina has not gotten any bigger

I found this Medhelp post by a doctor responding to a question

Dr. Kokil MathurBlank
Aug 28, 2010
Generally a grey spot on retina is due to leaking blood vessels. It can be age related macular degeneration (dry form) or it can be at any age (wet form, as in your friend�s case). Yes, it can be hereditary. Generally treatment is by laser. Beta carotenes and Omega-3-fatty acids are known to help in recovery. Please ask your friend to discuss this with her eye surgeon.

That sounds better than lymphoma or melanoma. Did the doctors you saw rule out Macular Degeneration? Keep us up to date on it Kat!!

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