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oldfixer

Climbing Out Of The Hole .... an update

oldfixer
10 years ago

Hi from the Fixer. Wish that name were more appropriate right now. Since talking is good, let's make an attempt to try it here. A previous post received welcome thoughts, prayers and support from you great people at KT. Thank you again. I slipped into the "forget it" rut, everything was suddenly out of control. But, only temporary, thank goodness. That "don't give a damn" hole is not a pleasant place to be. It took a little work to climb back up, get on level ground, and re-direct efforts. Someone, thinking my life was boring and dull, has been throwing some challenges into life. Which have been quite a test of emotions, endurance, and sanity for a person going it alone. This is about a cancer patient, with not one, but now 3 cancer adventures. OK, I'm an oddball. It is not about a cancer that has spread. These are three individual conditions, none of which is related to the other. A weird triple header. Each requires it's own specialist to deal with each specific type. Guess you get to meet a lot of doctors this way, in between working, and living.

The first unexpected diagnosis came with "You have Bladder Cancer". Emotions, anxiety and fear took over. It took a while to realize that generalities will drive you nuts. It took time, but one must wait and evaluate their own specific condition, then zero in on how to proceed. Every patient is different. Not pleased at the start, I did switch doctors. Not all urologists are competent in dealing with bladder cancer. Get that 2nd opinion, or seek a specialist. It could save your life. 4 surgeries, and
on going treatment. Anyone familiar with "BCG"? Bladdder Cancer is sneaky and re-currence is frequent. It requires a lifetime of monitoring.

In between BC, up popped skin cancer (twice). Early detection is a key, and I was fortunate for that. But serious enough to require surgery, and they dig quite a deep hole to get it all. Found a dermatologist who was quite qualified and experienced. The last surgery healed nicely, and I was just released from care. I am also much more aware now, to be looking for suspicous activity. Maybe it's good to have a cancer you can see, rather than one lurking inside your body before it's noticed.

That someone thought, this is one tough dude, let's try again. Which leads to diagnosis of cancer #3, specifically named Myelofibrosis, a rare blood disorder. The petty stuff is over, this is serious. Being the most recent, it's been tough to understand and comprehend. The implications are more than immensely confusing and technical. Yikes, what a mess. I did qualify for a medication, and just finished the last pill. Now to schedule lab work, and compare blood counts. Obviously, blood is the important factor. This will be soon at the MF doctor (hemo/onc), and evaluating how to proceed. I'm doubting it may be too soon yet to request another bone marrow sample(??) OUCH!! Like before, it ensued the "what if" waiting period. Hopefully now, we'll be able to zero in on specifics. If more testing is required to examine genes and chromosones and molecules, let's go. I'm ready to accept the outcome, because there is no known cure. Didn't say I have to like it. But I want to know where I stand ..... RIGHT NOW. Thanks for letting me blab personal problems.

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