Fairegold, you hit the nail on the head. Her ability to deal with any kind of problem is so low now as to be non-existent. This had been happening gradually, but it really accelerated after she broke her hip last year and had to have surgery followed by a month-long stay in a convalescent hospital. I remember you once saying that dealing with an elderly loved one is mainly going from one crisis to the next, some of them real & some of them not. Settling fear & soothing them is almost as important, maybe more important, than dealing with physical issues. I understand what you're saying about finding another doctor with a better bedside manner. When my husband & I went to calm my mother down, I put some moisturizing drops in her eyes. Even though both the doctor & I have told her numerous times to use the drops, especially after the injections, she never has bothered. But, apparently, they really helped her. When I called the next day to tell her I had made an emergency appointment for her, she told me she felt 100% better; her eyes didn't hurt anymore. I had asked her over & over the night before about pain & irritation in her eyes, but she assured me that there was no pain only vision loss. And, of course, once the irritation was gone, her vision seemed to improve too (to her way of thinking). So this crisis has passed, but I know there's another one just lurking around the corner. Her tolerance for pain has diminished so much that I don't think another injection, no matter how helpful it may be, is an option any longer. Thanks for your encouragement & advice. I'll be back when the next crisis, real or imagined, happens. Sue

Hi Karen, this is going to be a bit long but please bear with me 'cause early Sjogren's is sneaky & I'd like to give you a reasonably comprehensive overlook. I'll start with Dry Eyes & Dry Mouth 'cause they are hallmarks of Sjogren's. Dry Mouth - Even as a teenager, I remember always having a drink with me although I don't exactly remember why. Never went to the store, never went on a date, etc. without that drink. It was a part of me. It wasn't as if I felt urgent need to hydrate myself. Just always this desire for frequent small sips. That continued for the next 30 years but didn't get any worse. About 6 years ago, it became uncomfortable enough I started mentioning it first to DH. "Gosh, my mouth feels like cotton balls!" Soon, it was bothering me enough I mentioned it to my primary care doctor. I was taking Flexeril at the time for a spinal injury & my PC doctor just shrugged the dry mouth off as a side affect. Now, it's so dry it bleeds. Mouth sores - yes. Dry lips - yes. Blisters - yes. The dry mouth has progressed to now being nearly impossible to deal with but that has taken decades to reach this point. Dry Eyes - My eyes have sorta "itched" for several decades. I never thought much about it. I've had eye infections over the years also but they were far enough apart I didn't think to mention it to a doctor when a new one turned up. Dry eyes have not been my primary focus with Sjogren's but they are now dry enough my opthomologist pretty much insisted I have the Eye Plugs inserted. They've helped, a lot. I still need drops. Eye lid infections - yes. Sores in the corners of my eyes - yes. Swallowing, Talking, Choking - My Sjogren's has progressed to where I can hardly talk anymore. I also have trouble chewing & swallowing. Many foods are impossible for me to eat. My diet has changed dramatically in the past 3 years. I also choke - especially on pills but also just trying to eat a meal. At night, my throat swells & sticks together blocking off my air. I wake up in a panic reaching for water. Dry Skin - Again, for as long as I can remember I've had dry skin. I'd go through gallons of lotion. Now, I use prescription stuff that really helps. Fatigue - Gosh, just thought I was "weird" & a bit unlike my friends. I never had a curfew as a kid. Mom knew I couldn't stay up late enough to need a curfew. She was right. Sometimes, I would fall asleep practicing with my chin on my accordion. Again though - nothing that seemed like a trip to the doctor was necessary. I will say though that the fatigue was complete. Sometimes, it felt like lifting my arms to brush my hair was impossible. Muscle/Joint Pain - Today "this" hurts, yesterday "that" hurt. Everyday, somewhere else hurt. The pain would last for a day or weeks & then disappear just as mysteriously as it had arrived. I thought it must be "normal" & I was just a wimp. I was diagnosed with fibromyalgia at some point & from then forward whenever something hurt doctors would just shake their head & use that diagnosis as explanation for my pain. Many times the pain was unbearable. I once overdosed on aspirin trying to get relief. That episode resulted in more blood work. Negative for everything. The pain though continued. In my mid-40s, I had an extensive & unusual spinal surgery to correct a rare injury. The surgery almost did me in. After that surgery, doctors blamed the surgery every time I burped. I should note that I've had 13 major surgeries for "unusual" stuff. Fevers - I have a history of spontaneously running a fever. Fine one minute. Poof, next minute...I've got a fever of 101+ degrees. An hour later, I'm fine. Nightsweats - I've had then for decades. Always associated them with some cancers (I'm also a multiple cancer survivor) so I was afraid to mention them to my doctors. But, my fear didn't make them go away. Still have them. Still haven't told my doctors. Heart Palpitations - Ended up in ER. Diagnosed with "Anxiety Attacks". Nope. Sjogren's. Sensitive to Temperature Changes - I'm either cold or hot. There's only about a 5-8 degree range I'm really comfortable. It's not just chilly or a bit warm either. I'm either shaking from cold or in ER from heat stroke. So, we keep our house even temperature year around. Sometimes, cost isn't everything. Dental - Gosh, where to begin? Let's just say I fought a good fight but just a couple years ago I said, "ENOUGH! I can't tolerate this anymore. Pull them out, every single one - NOW! I'm not leaving this office until they are gone." Even implants would not stay in my jaws. I've pulled two that were erupting from my jaw by hand in the middle of the night to stop the pain. Now, I've got dentures (should have done that years ago!) but my mouth is so dry my tongue sticks like glue to the dentures & bleeds when I try to move it. Ugh. Neuro Pain - This is now a serious problem. I have no feeling at all in my legs/feet. Seriously, I can't feel the floor or anything else. Sharp pins/needles type pain virtually constantly. Stress - I had a garden accident July '09 & re-injured my spine around the surgical area (right between the shoulder blades). My back surgery had been so "unusual" a hotdog surgeon was brought in from Arizona. He published a "White Paper" on me that lives for eternity in medical journals along with the video they took of the the entire surgery. Anyway, the re-injury hurt so bad I had a stroke. Yep, I met the definition of "stressed" there for awhile. As I started to settle down from this little incident I noticed that my mouth was drier, my eyes were drier, my muscles/joint pain was worse, the fevers were more frequent, etc., etc., etc. I could go on with other symptoms but I think that's enough for you to get an idea of Sjogren's. Eventually, I found a doctor that treated me as a whole patient & didn't just look at the reason I'd written down for that particular appointment. It led to my diagnosis for both Lupus & Sjogren's. A word about the bloodwork is in order here, I think. I'd had these tests multiple times before - always negative. Many doctors said, "Tricia, I "think" you've got Lupus but your tests don't bear confirmation of that diagnosis." One even prescribed Placquenil & my fevers virtually disappeared. Unfortunately, that doctor left the practice & his replacement didn't believe my tests justified the risks of Placquenil. The fevers returned within a few short months. Anyway, my current primary care doctor redid the bloodwork yet again. This time, I was positive for both Lupus & Sjogren's. It tooks decades for those tests to turn positive. My last SS-A test results were 2.78. Positive. My SS-B test results were 3.25. Positive. Also, Sjogren's patients often show Vitamin D deficiency. I'm almost always testing deficient & take 50,000 mgs once/week for 4-8 weeks then off for a bit until we test again then back on for another 4-8 weeks. You will also, most likely, have an abnormally high SED rate. It will vary if you're having a Sjogren's "flare". BTW, that's the best time to make the doctor's appointment - when you feel awful, like you can't drag yourself anywhere. I'd recommend finding a doctor that will treat ALL of your symptoms. Treat you as a whole person with this variety of things happening that may seem unrelated, to you. Tell your doctor every little thing. Sjogren's is SYSTEMIC. It affects your whole body. Yes, there are specific markers like the dry eyes/mouth thing but many Sjogren's symptoms mimic other diseases. Diagnosis is often overlooked both due to doctor indifference & lack of persistence in patients. There is no defined Sjogren's protocol for treatment. It's a "treat it as it appears" approach for most doctors. (bummer) But, a protocol is being developed now & the goal is that it will be available to doctors in 5 years (I know, sounds like an eternity but, like breast cancer, you have to start somewhere). I've recently been excepted at John Hopkins. They have a specific Sjogren's department & a doctor heading that clinic who has chosen Sjogren's as his life work. My first appointment is October 18. I've received volumes of "stuff" from John Hopkins regarding my appointment that will be two full days. I'm got appointments for about a dozen specialized tests. I've got advanced Sjogren's & frankly feel just about defeated. After 50+ years, it's taken a toll. But, I accomplished a lot with my life - Sjogren's be damned. I don't know if my disease process will help you identify what you're experiencing, or not. But, don't ignore your symptoms. If they sound like they could be Sjogren's - be persistent. Just know that it will be a journey to diagnosis. Not a short sprint. Since getting me as a patient my PC doctor has been able to make a diagnosis on another women for Sjogren's. She's thanked me saying she would have overlooked the clues had it not been for having me as a patient. We're learned together about Sjogren's. So, doctors are becoming more aware & Venus Williams' diagnosis, hopefully, will also draw more attention to this autoimmune disease. mboston, don't give up. If your gut feeling is correct (and, IMO, our bodies usually tell us the truth) then you'll need to stay in your doctor's face until you get a blood test that pops positive. That can be illusive. If you're having a flare...make an appointment. Tell the receptionist that next week is not OK...you need an appointment tomorrow! /tricia

Contact lenses are much abused eye products and can actually cause damage if not picked wisely. Here are a few reasons why contact lenses should be picked wisely after a prescription and that too after a visit to a qualified eye specialist. To begin with, a contact lens need not be 'fits-all' type. One must get it prescribed. Since a prescription is an authorized statement that clearly mentions what is ok, you can shop with confidence and it feels good that you are doing the right thing. Since buying a pair of contact lens can happen only through a prescription, any website selling 'branded' contact lens are likely to be selling lens that may not be branded and that isn't good news for your eye. If you have been wearing both glasses and contact lens, you are now aware that the prescriptions are a little different from each other. While most of us know what we need a prescription to buy glasses for eye sight problems, the same prescription cannot be used for contact lenses. This means, you need to get a separate prescription for contact lens. Even if you wish to wear contact lens for changing your eye color, you will need a prescription from an Opthalmogist. If you prefer to wear a specific type of contact lens, you can talk to your doctor so that she or he can recommend and also mention that brand in the prescription so that there are no hassles tomorrow. The doctor can also clear any doubt and specify the positives and negatives about any special type of Contact Lens. A prescription will have the doctor's contact details and this way, the dealer can call and check should there be any kind of confusion or if any clarification needs to be sought. Here is a link that might be useful: Contact Lenses

I had no idea that this problem was as common as it is as I have only encountered it in myself and my dad who also complained of night vision problems. I have had problems with depth perception at night since my 20's and can remember walking off of curbs or into puddles because I couldn't see them. Up until recently however, the problem was manageable. Now however, I don't dare drive at night because not only can I not see well, the lights have become so blinding and glaring that I feel like I am driving in a video game with limited vision to boot. Unless I can get behind someone and follow their taillights, I can't manage it at all and usually have to pull off the road several times. If its not the lights glaring and making it impossible to see, it is the absolute blackness and my inability to see more than a few feet in front of myself. On top of that, I can't walk around outside at night anymore unless it is well lit up. If its not, I barely shuffle forward as everything is dark and appears flat. I am almost completely blind at night. I am only 53 years old and when I mention this to my mother she scoffs at me and thinks I'm being silly. She is 83 and thinks she is the only person who has medical concerns and because of my age, it must be nothing. Personally, I'm getting worried. Its gotten so much worse in just one year. I can't afford health insurance and she won't help pay because she thinks its unnecessary. She has more than the ability to help out but won't. Anyone else think this is something to worry about?