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Taking yourself off Paxil without side effects...???

Posted by Sooz (My Page) on
Tue, May 25, 04 at 1:00

One of my dear friends, J, had been taking Paxil for a few years. J's "situation" that lead to her taking this medication has greatly improved and she is looking forward to stopping Paxil, under her doctor's supervision.

J's doctor advised her to cut her dose in half for a week, so instead of taking 20mg/day, she'd be taking 10 mg/day. Then, cut that down to half again for a week--take 5 mg/day for a week, then stop taking it entirely. In two weeks, she'd be weaned entirely off Paxil.

J's a bit worried about the things she's heard about people trying to come off Paxil, and the side effects. She's heard everything from seizures to flu-like symptoms, to dizziness.

Does anyone have any experience with this?

I've always heard that the longer you take to get off Paxil, the better it is for you...like maybe she should ask her doc if she should take 10 mg/day for two weeks, then 5 mg/day for another 2 weeks, then either stop, or take 5 mg every other day for 2 weeks, then stop entirely.

Thanks for any input!
Smiles,
Sooz


Follow-Up Postings:

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RE: Taking yourself off Paxil without side effects...???

Tell her to follow her doctor's advice. He certainly knows more about her than we do and he may have reasons for wanting her to do it that way. She should keep in close touch with him so that if things do not seem to be going well, he can make adjustments.

Above all, she shouldn't worry about things that she has "heard." She doesn't know about what those people's particular circumstances were or what their doctor's had told them to do. There may have been other medications involved. That's just worry that she doesn't need.


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RE: Taking yourself off Paxil without side effects...???

I agree that she should taper off. I was on Paxil a few years ago and decided to quit, so I just stopped taking them. I had a couple very rough days, for me it was more mental side effects and not physical ones. It definately can be an addictive drug.

Good luck to her.


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RE: Taking yourself off Paxil without side effects...???

PeaBee4 is right on everything. In my experience, a two-week taper isn't out of line at all, in fact it's rather generous given the three days I had to discontinue it (and change to a different med).

Yes, there are *discontinuation* effects assoicated with Paxil. Some people have no effects at all when going off, and I say that based on the patients I personally work with as a health care provider. These are NOT side effects of going off an "addictive" drug because Paxil is not addictive.

M.


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RE: Taking yourself off Paxil without side effects...???

Thanks for all the helpful input!
Smiles,
Sooz


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RE: Taking yourself off Paxil without side effects...???

Sooz -
" the things she's heard about people trying to come off Paxil, and the side effects. She's heard everything from seizures to flu-like symptoms, to dizziness. "

Side effects are most often seen in people suddenly stopping it, not tapering off ... she should follow the dr's instructions. And not blame EVERYTHING on the Paxil: one friend of mine blamed it for a nasty bout of flu-like symkptoms - until her hubby came down with the flu too.


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RE: Taking yourself off Paxil without side effects...???

She should never quit taking an antidepressant without her doctor's advice. My spouse quit taking Depakote on his own and right now he is more depressed than ever. Is she wanting to try another medication or just quit all meds?


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RE: Taking yourself off Paxil without side effects...???

My sister quit cold turkey and had a very terrible few weeks and is very glad to be off it. She found less trust in her doctor who had been prescribing them to her and was grateful that she got off them and out of his life!

I think one should always find a doctor who is a friend or best- a family friend someone who cares and has integrity and ethics.


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RE: Taking yourself off Paxil without side effects...???

Happy update! My friend J successfully weaned herself off Paxil with nothing more than one slight bout of dizziness, and with the doctor's supervision if needed. She extended the doc's recommendation to 2 weeks, so she took 10 mg/day for two weeks, then 5 mg/day for two weeks, then stopped it entirely.

Thanks to all who posted!
Smiles,
Sooz


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RE: Taking yourself off Paxil without side effects...???

Glad to hear your friend was successful. I'm in week 4 or 5 of trying to wean off - it sucks. I've only taken Paxil for about 6 - 8 months. Every time I step down to a lower dose I get migraines. If I skip it for a day I get the "brain zaps" people describe.

Doctors should warn their patients about Paxil and drugs like it. Granted, some people really need them so they can function, but it's very addictive and nobody seems to acknowledge that.


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RE: Taking yourself off Paxil without side effects...???

I've been extremely slowly been tapering off Paxil, under my doctor's supervision. I was easily able to gradually go from 40mg to 10mg. But, under 10mg, I just get these horrible side effects! After spending months at 10mg, I've begun cutting off the ends off my pills. I've been doing this for 2 weeks and it has been very difficult (mental and physical side effects, such as irritability, mental instability and being short of breath). I've had to wean off Effexor XR and Desyrel before, but Paxil has been the worse. My doctor says such anti-depressants are not addictive... That is just not my impression... I guess people react differently to these meds, but I think doctors should listen to us patients who have suffered from severe side effects while tapering off them. I guess I'm a little sour, especially since a psychiatrist said they should never have given me these meds in the first place!


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RE: Taking yourself off Paxil without side effects...???

I am currently weaning from paxil/paroxetine after over 9 yrs. of taking 20 mg. once a day, every day. First, I must say that I am only one of a long list of family members who have/had anxiety/panic disorders and severe depression (with many suicides). My doctor advised me to take 10 mg. for a week then alternate taking it one day and none the next for another week before completely stopping the medication. The first week of being on only 10 mg. was the worst week of my life! The brain zaps quickly spread to my entire body. (I have experienced brain zaps in the past by missing a regular dosage time but these were the most horrible zaps I could have ever imagined.) I felt like I had the worst flu ever! I even ran a fever. I searched for answers online and found that I was not the only person to experience these awful and terrifying symptoms while trying to withdraw from paxil/paroxetine. The main point on every site I visited was to take the weaning SLOWLY. I called my doctor and she agreed that I would have to go much slower with the weaning. She offered to prescribe the paroxetine in liquid form to make the dosage decreases easier. (I have OCD also but even I can't cut that little piece as tiny as necessary.) I am currently on 12.5 mg. and will stay on this dosage for at least 2 weeks, eventually dropping to 10 mg. I may have to take it one milligram at a time but I will succeed and be paxil/paroxetine free one day! Oh, the reason for my weaning off paroxetine? The weight gain and the tiredness were at the top of my list, but my husband's biggest (and constant) complaint is my total lack of libido. To make a long story short, the one vital suggestion I can offer for anyone weaning off paxil/paroxetine is TAKE IS SLOWLY! Talk to your doctor. It seems some doctors are actually finally admitting that this medication is more than 'just a pill' now. Best of luck to you all!


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RE: Taking yourself off Paxil without side effects...???

Not quite sure how I ended up here. Google is such a weird thing, Still, glad that I did. People here seem to be taking a lot of sense. I've been on paxil/paroxetine for approx 12 years at various dosages, depending on my syptoms. I'm currently taking 30mg a day. I'd really love to be able to come off it but after reading so many horror stories about withdrawls and the like, I'm really quite afraid to even give it a try. Even the thought of trying to wean myself off it and I start with side effects. I have spoken with the practice nurse at my doctors and she agrees that when I do decide to come off it then it's best to do it very slowly. I've actually decided that to wean myself off it I'm gonna do it by a mg a week using the liquid version. In this case it'll take me 30 weeks to come completely off it, which in my mind isn't bad really as long as I reach my goal.

I'll post on here when I start and hopefully keep everyone informed of my progress, this way it may help others with their plight.

I would like to add that I feel paroxetine has really helped me over the years. I've been in some pretty dark and lonly places over the years and without the help from this drug I'm not sure how I'd have made it out of there. I feel this is a very important drug to many in stabalising their lives and giving them a life back. There just comes a time for people when they want to face life without a crutch, and for me that time is now.


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