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spasmodic torticollis

Posted by lillykay (My Page) on
Wed, Jan 9, 08 at 20:09

does anyone have or heard of spasmodic torticollis ? I`ve been taking botox shots for about 5 years and was wondering if anyone else has heard of it?

Follow-Up Postings:

RE: spasmodic torticollis

I had not heard of it before, but after reading about it on some sites, I realized that I have known people that had it. I just didn't know what it was called.

Have you done a google search yet? There are tons of information on this condition.

RE: spasmodic torticollis

Well agnespuffin
I have researched it and it is very rare, my Dr. told me it was nothing that you inheirit but they dont know what causes it .he said it was deep in the middle of the brain so they have know why of noing what causes it ...I told him they could have my brain when I died and he said ok its not a fun thing to have but i live with it ,

RE: spasmodic torticollis

I haven't heard of it, but as a person with a rare skin disorder I find talking to others with the disease is very helpful. Here is a link to a forum you can join to chat with others that have ST.

Here is a link that might be useful: Torticollis Forum

RE: spasmodic torticollis

thank you lydia1959
thats very nice of you , thanks again

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