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Just a quick update!

Posted by emeraldisle624 (My Page) on
Mon, Feb 11, 13 at 18:34

Hi everyone,

I know I haven't posted much lately but I am here at least once a week seeing what you are all up to. I feel like I have been wishing the days away, trying to keep my mind busy and letting my body and medicine do it's thing. It's been a long 7 months since the endometrial cancer was first diagnosed.

I had my 3rd and final d&c last week at MGH in Boston. Everything about the procedure went like clockwork, unlike the last time. I was the FIRST patient allowed into pre-op in what seemed like hundreds that showed up at 5:30am. The lobby at MGH was seriously like a bus terminal, never seen anything like it. I wasn't the first one to show up nor was I the first one to see the people in the surgery check-in lobby but somehow I got to be the first sent down to the nurses in pre-op and get a room/prepped for surgery (everyone else had been told to take a seat and they'd be called soon). Then I was the first one wheeled to surgery and then the first one discharged! I swear God was holding my hand and making things as easy for me as possible, I had an aura-type feeling about me all day. If it was just my imagination, it's ok I'll take it!

I never saw or talked to my doctor, I think it was because everything was on schedule (or maybe even a bit early as my husband got the call at 8:30am that I was on my way to recovery) and they had me knocked out when she arrived.

Breezed through recovery, out in record time just to go home and wait 7-10 days for the results. I had such anxiety leading up the surgery that my whole body hurt. I swear I hurt even more in this past week waiting, like I tensed up while sleeping or something. I didn't feel too stressed during the day while awake as I have been pretty good at going with the flow and trying to put my trust in having everything work out the way it's destined to.

Since tomorrow is day "7" of the 7-10 days I was going to email the nurse and ask if any results were available yet. She knows I am anxious and that I would be waiting every last minute.

Depending on the results, I'd either be scheduling an appointment with the fertility specialist or to have my inevitable hysterectomy.

I got a call this afternoon that said "blocked" on my cell phone. My stomach dropped as I knew who it was going to be, the doctor or the nurse with my results.

I just wanted to update you all that I will be calling my FERTILITY SPECIALIST to make an appointment to get in there as soon as I can for the next step. All of the pathology came back with no malignancy found!

I even had her email me a copy of the report because I was so afraid that she called the wrong person and was giving me someone else's information! I have it in black and white, NO MALIGNANCY FOUND, in 2 different places next to my name!

I of course couldn't stop crying and I was waiting for my husband to get home. He got home and the dog ran outside with him. He's getting the mail, chasing the dog, all these things while I am just patiently waiting for him to come in. And I told him the doctor's office called and quickly went to add that the cancer was gone, I am to stop my meds and get in touch with the fertility doctor tomorrow. I felt like I was dreaming. I thanked God so much for answering all the prayers that were said for me and for giving me this opportunity.

I still have a long road ahead of me and there are absolutely no guarantees of anything. But I am going to try my hardest to make our dreams come true. I am so very thankful and humbled by everyone in my life (online and in person) who have reached out to me and helped me more than they will ever know.

Please continue to keep me in your prayers, I hope there is a miracle in the making. I am on a short timeline and I should have a better idea after seeing the fertility doctor again soon. (I think the meds have to be out of my system 30 days but I don't recall exactly.)

Sorry for the long post, I didn't want to leave a word out in case this and my other posts ever help someone else. I hope you are all doing well and please know I think of you all often. Your prayers and healing messages changed my life and today is living proof of that.

Thank you again.
emeraldisle624


Follow-Up Postings:

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RE: Just a quick update!

Yay!!!! You really know how to make my day. This is awesome news. Congratulations and (((((big hugs))))) all around!

Now you need to keep us updated on the fertility treatment... Been there, done that.


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Hooray!!! Congrats on a very bright future and dreams come true!!!


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Beautiful. Just beautiful. I hope and pray for you that another miracle will happen for you very soon...


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So happy for you! Your post just glows with joy. Thank you for sharing your wonderful news.


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I don't want to get all hokey, but I actually opened my computer and clicked on the Conversations side just to see if you had any news to post.

Imagine my surprise that this was the post that was at the top, and it was only started tonight. Wishing you all the best, and continued prayers for you and your husband.

Bee


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That is wonderful news. You must feel as though you won the lottery.


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Fabulous news...continuing to surround you with blessings!


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That's wonderful news!!!!


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Oh Emerald, what wonderful news!! I promise to keep you and your DH in my prayers as you embark on this next journey.

No malignancy! Yay!

Beth P


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That is wonderful news. I will keep you in my prayers for a happy ending.
Lots of love and positive energy coming your way from NJ.


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So happy to hear this!


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Your joy and relief are jumping off the page... how wonderful for you. We all take our good health for granted -I bet you never will..... wishing you all KINDS of good things in the future....


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What a journey this has been for you, I'm so glad the outcome is positive !!!!


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Thank you so much for sharing your good news...I am so delighted for you!


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Wonderful wonderful news!


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Thank you all so so much!

I told my DH I had to post it online after we had dinner last night (I was almost too excited to eat but somehow I did it lol). He was like, online? I said, yes, to the ladies at Gardenweb as that was the first place I reached out to after my diagnosis and it was only fair to share the exciting news as soon as I knew. This means that the prayer chain worked!

I am by no means cured of cancer, in case anyone just diagnosed finds this thread by googling or whatever. The only thing that happened is the medicine counteracted the hormones and, in my fancy medical terms, chased the cancer cells down and ate them. So, slowly but surely, since I am no longer taking the hormones, the cancer will slowly grow back and there is no way to know how fast or slow that could happen which is why time is of the essence to get pregnant now. When/if I get pregnant, my body will naturally make huge doses of that missing hormone and actually protect me from the cancer during pregnancy. I will have to have a hysterectomy within a few months or after pregnancy no matter what due to the cancer risk. I can't grasp how remarkable our bodies are.

Thank you so much again for all of your thoughts and well-wishes. I am waiting for the doctor's office to open at the fertility office and then I think I might just dance around the streets all day. I was so excited last night I could hardly sleep, the night before I was so nervous I could hardly sleep too. Hopefully I might get some real rest soon, but right now it's a good kind of tired!

Beekeeperswife: Not hokey at all, made me feel so special to read your post. I just didn't want to post again until last night when I had some real info. :)

Have a fabulous day everyone!!

This post was edited by emeraldisle624 on Tue, Feb 12, 13 at 9:06


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Wonderful news!!

tina


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emerald, just had to chime in again. Your happiness just shines through in your posts! You seem like such a sweet person. Good luck to you!


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Emerald, you have no idea how happy you made me when I read your post. You've been truly blessed to have another chance and I have positive vibes that you'll have your baby and live a long life. God bless you and your family, it was a tough road but better days are coming. Sending healing love.


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Great news! I have been following your story and I am so happy for you and your husband. While I didn't suffer thru cancer, I did struggle thru 4 long years of infertility. I know what it is like to long for a baby and I am so glad that you now get to go on this wonderful journey!


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I am so incredibly happy for you and will continue to keep you in my prayers. I'm a firm believer in the power of prayer! God bless!
Lynn


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I am overjoyed for you. It's so refreshing to read good news. Lot's of luck with your fertility appt.


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I am crying reading this. Thank you for sharing your news. I am just so happy for you!


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wow! what a story! congrats on your good news and god bless with the next phases!


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  • Posted by roselvr 6B Lower S.Jersey (My Page) on
    Tue, Feb 12, 13 at 18:53

I'm so happy to see your post! Hard to read with the tears in my eyes! Sorry I missed it yesterday; I saw the new format the other day & almost didnt come back.

I'm so very thankful you were given this chance.
You did amazing with researching where to go & so far it's paid off.

Tell your hub to give you an extra hug from us
<3

Edit- bumped your other post for those that don't come here often but would also love to hear your news. I also copy & pasted what you said in case someone googling lands on that post 1st.

This post was edited by roselvr on Thu, Feb 14, 13 at 8:20


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RE: Just a quick update!

Thank you all so much! I just wrote a whole book of a reply and hit the wrong button and lost it. grrrrrrr!!

All of your replies warmed my heart and made me feel so blessed. Thank you for taking the time to write your kind words and well wishes. I'm sorry I made some of you cry, I never meant to do that. But I guess miracles can cause that to happen! :) I cried a few times today from sheer relief. I opened my email a couple of times too to make sure I still had the results that said "no malignancy", like it was a dream that I got it yesterday.

I think I may sleep very well tonight from all the dancing I did in my life today! I felt like the stress was lifted for at least a little while, just like when I started the medicine back in August. I meet with the fertility specialist at the end of March (his earliest appointment) and I am on the cancellation list if anything else comes up sooner. But I think it will be ok to wait that long as he had told me before that he couldn't get true hormone readings with the prescription meds I was on. I have a message into my oncologist just to make sure it's ok to wait that long. She works close with him so I think if necessary, she would intervene with him to get me in sooner. I have since found out more info about him since my last appointment with him and he seems to be a miracle doctor. If he can't get me pregnant now, I don't think anyone can. Hopefully I will be an easy challenge for him!

It feels weird to stop taking my medicine, even though it's only been a day. I felt like I was "doing" something to help myself taking it exactly every 6 hours 4x a day all these months. I tolerated the Megace so well, I felt so great on it. A lot of women have issues with it so I am thinking I must have had a bad hormone imbalance for a long time and this satisfied it. I am so very thankful that I was able to take it all this time without any side-effects at all.

I forget everything else I wrote, don't you hate that??

Your messages stuck with me all day long, made me smile bigger and my heart beam with more joy. The sun was shining today and everything just seemed peaceful and right. I am so so thankful.

For anyone going through cancer and looking for a spiritual book to read, I picked up a copy of Dodie Osteen's Healed of Cancer. It's a small paperback book that I carried in my purse and took out any time I needed to get my mind back on track. It's a religious book but to me, it's more the spiritual guidance that helped me and if it can help anyone else, I need to pay it forward and recommend it. (I know religion is very personal and I would never cross those lines here or anywhere else.)

**HUGS to you all!!**

p.s. Thank you roslvr for bumping the other thread. I'll be able to post all of my info into one thread and write a book some day maybe. It's like a mini-diary of my life for the last 7 months!


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Wonderful news! I'm so happy for you! Please continue to keep us posted!


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I am so glad for your news. I hope that your pregnancy happens SOON !

My best friend just got back her biopsy reports on Monday and she is free of all lymphoma cells for now. As you have found it will come back but no one knows when or how fast .

One has to live now ...the importance of not waiting but instead living can't be stressed enough. Congratulations ! c


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Thanks for sharing your wonderful news. I pray that in a few months you'll be sharing "I'm Expecting!" news.

Hope all goes well at the fertility appt!


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What wonderful news! And I'm so glad you shared it with us -- it made my day.

Here's more prayers for another happy result in the very near future ;-)


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So very wonderful! Prayers for more good news for you soon!


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I have been following your saga. I am really happy for you. I wish you all the best for pregnancy.


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I am so, so very happy for you. I wish you continued wonderful news!


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That's such great news!


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Thank you all so much for your messages.

In case any of you hear the song "I'm so excited" from the Pointer Sisters anytime soon, that's been my theme song this week!

I figure I have a long wait (it seems to me) until my doctor's appointment but God is teaching me to be patient through all of this, it's a lot of waiting. So right now, I am embracing the excitement and I'm going to try not to worry until I have a real reason to! I am so convinced that the prayers everyone said for me and my positive attitude (even when it was hard to not get negative and worried) totally contributed to my test results coming back in my favor. I also eliminated a lot of stress in my life and it's changed my life tremendously. I'll surely never be the same after this experience and I am a little excited about that (in a weird kind of way, of course). This surely has made me a better person, I'd never thought I'd say that about a cancer battle. :)


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I have been away from GW for the last couple of months, spending time doing family geneology. I came back tonight and the first thing I did was search for your posting. I think the last time I heard you had just had your first D&C.

I am so happy for you! I'm upping my prayers for you that this will be the beginning of good news for you and your hubs.

I now have a reason to keep coming back for updates!

Mary


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Thank you, mboston! Just a few more weeks til my appointment with the fertility specialist! Marking every day on my calendar, seems like it's taking forever! But good things are worth waiting for. :)


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Wonderful wonderful news! somehow I missed this in Feb.


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Best wishes for you sweet thing! Just wonderful!!!


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Thank you ladies! I'll post my update at the end of the month when I see the fertility specialist. Please keep me in your thoughts and prayers, every positive thought matters!


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I am so happy for you and wish only the best for you and your husband. Your posts make me a little teary! Having worked for an ob/gyn, I saw many people enduring many things, and I know how hard the waiting can be, BUT you are doing great!

Take care & bask in all the many prayers & good thoughts coming your way.


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