You have to have a schedule and you have to adhere to it as best you're able. Sounds really draconian, but it isn't. It's the schedule that will keep an elderly person on course (esp. if they are losing mental capability), allow you to accomplish that which you must do, AND schedule help/respite. Help/respite. You must have this. Trust me on this. I have had Mum with me for nearly 3 years now. For fully 2 of them I did it alone. After her stroke I knew she was no longer able to bathe alone. I hired a woman to come in thrice weekly and assist her. Smartest thing I've done in a long time! I don't have to do it, it accords Mum some privacy, and she has another person with whom to interact. I calmly told my brother he had to step up to the plate and do some caregiving, too. It wasn't fair that I gave up my former life and he had to give up nothing. He now takes her for a month at a time; usually every 2-3 months. I'm OK with that arrangement; but know if he scheduled a "bath lady" it would be easier for him to take her more frequently. Try to incorporate them into your daily errands. I pack Mum into the car (along with the dog) and she "rides shotgun". She is perfectly happy to go for a ride, wait in the car in the sunshine while I dash into one place or another... sometimes she wants to go in, too... so I usually allot enough time. If I haven't, I simply say, "No" and explain why. I will grab her a "treat" if she must wait in the car. I make sure we get out to do something "fun" at the next opportunity. It takes practice to venture out with an elderly, infirm person. You will learn the places that easy to access, have comfortable bathrooms, have help that is willing to move slowly and patiently with the elderly. Mum goes every month for a shampoo/haircut/manicure. The woman is a delight; warm, patient, and gives Mum her undivided attention. We are "regulars" at several establishments BECAUSE they are willing to make time for a slow, old woman. It's hard work; not always fun. I miss my freedom terribly, if you want to know the truth. But I can do this and feel it is important for me to do it. She ain't gonna live forever, afterall. (Hi Connie!)

Nora, Thanks so much for your response...I feel so fortunate to have so many people respond over the past 24 hours. Your idea of a styrofoam ball with yarn is fantastic. My mom knitted and crochet her entire life...learned while in school in 7th grade and actually did it for a living while raising me and my sisters. Now, I have bags full of yarn and I've tried to encourage her, but she won't (I realize now it's probably that she can't). But, if I get the styrofoam balls, maybe, just maybe I can get her interested in winding the yarn around them. I cannot tell you how much this forum has helped me already...For 4 1/2 months, I've been so frustrated with my mom constantly refusing everything I've tried to get her to do. At times, she seems completely fine, so clear headed that I lose sight of the fact that she's losing her mind and at times have actually argued with her!!! How ridiculous! I'm beginning to realize that it's not that she doesn't WANT to do anything, it's that she CAN"T, or is AFRAID that she can't. I can't even begin to imagine what it must be like for them...what are they thinking, what are they feeling? How frightening it must be for them. These are thoughts that I torture myself with. I so want to cure her and take care of her; all I can do is be there for her and let her know that I love her and will always be here for her. Every day, when I leave the house (I go to my main office for a few hours 3 days a week) she asks me "where are you going?" and every day, I say "I'm going to the office" and she says "be careful and make sure you come home" and I walk up to her, every day, give her a big hug and a kiss and I say "I will always come home, and I will always love you." I guess that is all I can do..let her know she is loved and truly cared for and that I won't let anything awful happen to her. Now that I've rambled on so....I do have a question, if anyone is even still reading this...How do you manage caring for your mom knowing that she doesn't have a clue who you are? It must just tear you apart.One more thing Nora...nine years is a long time...how was she through the majority of those years? Was she aggitated? Did she get along with her caregivers? Did she put up a fight about bathing?...I'm done for now....thanks again...you've been more help than you can ever imagine...my heart goes out to all of you for taking the time to respond to me and caring enough to do so....

A very big Thank You for the tips on record keeping. I will try to start one tonight. 'Till now I've just noted Dr appts. on calendar. I wish she did eat just $20-25 a week. She eats everything in sight. I have to make DH's next day lunch before we eat dinner or there's nothing left. I've really gone through my freezer just trying to make it to the end of the month for my retirement check to get deposited so I can buy more groceries!! Once we catch up on all of the behind bills and pay off S-son's cell phone,sattelite, etc., (He put everything in her name) we will have a little extra to spend on her from her check. She was so spastic about the warrant for the heating oil bill that we took $$ out of our savings and paid it before court day. That will be the first thing to come out of her retirement check. S-son called yesterday to say he had finally gotten a job. I'm doing the happy dance now! Hope it lasts. This has really taken the wind out of his sails because his Dad made it plain that there was NO MONEY. He's had to figure out how to come up with his own party $$s. She is talking about selling her house to get out from under the payments. 2 possible issues with that. 1) With the economy I'm not sure we can get enough to pay off the loans. 2) That house was built by her Daddy and NOTHING has EVER been thrown away! I'm dreading trying to clean out the house and multiple sheds/buildings. All and all, things are settling down a little. Stress level has dropped a notch. All of you have been my life raft. Can't thank you enough. Oh yeah, DH's Mom (Aunt's sister) has called and gone by the house repeatedly to try and get anything she can sell out of it. She knew everything that was going on and has already been there and carted off everything of value she could fit into her car before we found out how bad off Aunt was. (Such a sleeze bag.) In case you are wondering where we have been- DH was in a horrific accident on the job early last year and almost died. We spent many days in intensive care, had a long hospital stay as well as return trips for emergencies that kept popping up, and a very long recovery at home where he was practically bed ridden wnth me giving him daily very strong antibiotic IVs thru Pic line straight to his heart. When we finally got him on his feet and able to go check on Aunt- all of the family vultures had done an awful lot of damage financially as well as helping themselves to antique quilts, dishes, etc. S-son doing the most damage in the $$ dept. Let's just say I'm so grateful to God that I had the upbringing that I had. Poor DH is a Saint to have turned out as well as he did to have come from that family. Thanks for letting me vent here. It soooo helps my stress level to get it out. Betty

Hi! I'm back for an update. It's been almost a year since I posted this asking for advice and so much has changed. The property that my grandmother owns is now in litigation. One of those 'golden' children is suing because they say it was 'promised' to them. So now grandma even has more of a headache because she has legal fees, depositions and an upcoming trial that she is having to prepare for. Of course her lawyer says that there is no case and that they will not win. However it cannot be sold until litigation is complete. My relationship with my grandmother has gotten much better AND she is actually enjoying spending time with me and my family to give my mom a break. She comes over and sits and watches tv with me and the kids make her feel like a million bucks with all of their coloring and 'gifts' that they make for her. My older daughter enjoys helping to fix grandma's hair and likes to help her open doors and things like that. Smothering my grandma with love has seemed to work in the last few months. Her relationship with my mom has gotten better. She is still pretty mean but she no longer calls the other siblings to complain about my mom. She will snap at my mom but quickly apologizes. She has seen the devotion that my mother has for her and I think that has really changed her. As the weeks and months go on, my grandmother becomes even more confused about things and that is very frustrating for her but she leans on my mom where this time last year she would lash out at my mom. She actually enjoys being around my dad too. Our family dog passed a few months ago and my grandma took it pretty hard. We didn't realize how attached she had become to the dog but she tells us that in the afternoon the dog would go in and sit in her room and watch the kids walking home from school through the window. They bonded which is not something my grandmother is good at. The passing of the dog seemed to bring her closer to my dad which has really surprised us all. She says I love you a lot. She says thank you to my mom. I've caught her calling my mom honey and sweetie which are not names my grandmother ever uses. One sibling has stepped up. Well his wife has stepped up but at least my mom has help now. My parents have been able to travel on three vacations which they had not done in over a year and they were travelers before my grandma moved in. My grandma stays with my uncle and wife for several weeks and actually misses home. That's right she calls it 'home' now. The situation is not perfect but it seems to have gotten better. With her acceptance of how her life his now, she seems to be much happier. She doesn't want to go to a home and so I think with the fear of that happening she has straightened up a bit. She still has those moments but she seems to realize when she has been ugly and shows remorse. She actually sits in the living area with family instea of shutting herself off in to her room. The dr's say she is doing well. She had a scare not that long ago but seems to be much better now. I'm not sure what changed my grandma but she is not the miserable old lady she was last summer. She is a much nicer person who allows her family to love her and help her. Just wanted to give an update.