feeding tube at home - what to expect
mikie_gw
17 years ago
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asolo
17 years agolast modified: 9 years agomikie_gw
17 years agolast modified: 9 years agoRelated Discussions
HomeMade Earth Box Design? FeedBack
Comments (13)Thanks Farkee for the food for thought ;-) I probably will invest in the real deal (Genuine Earthboxes) but this is just not the year to do it... I can talk my husband into perhaps a $20.00 expense, but not a $50.00+ expense, and because we are in Canada, with shipping and exchange working against us, it will definately be more!! Thanks for your ideas on the rocks, I am not so sure that a container filled with rocks and water or just water is more heavy, (don't underestimate the weight of water!) but the idea that it would take up 2/3's of the water is a good point, I did not think it would be that high! The cans are an interesting idea... I don't think soda cans would work here, not possible to take of the tops and bottoms, but ordinary cans would work... But this type of support system, just not sure what I will use, is likely the best way to go... I have seen Josho's containers earlier this weekend, very inspiring!...See MoreWhat to expect from my clemetis (clemeti?)
Comments (1)Here's what COTW says about it...Hope this helps. This was a new one to me. Tanya Here is a link that might be useful: ochroleuca at COTW...See MoreMaintaining feeding tubes(With some history)
Comments (8)Thank you all for your thoughts. A nursing home is something we were beginning to seriously consider earlier this year. It is getting to the point where we know we may not be able to maintain his health and while it would be far from the first choice for he and my stepdaughter, neither really have an inkling of the emotional and sometimes physical toll it takes. I was to the point where I would give him his bedtime pills, tell him it's time for bed and thinking "Now if he only goes to sleep, we made it one more day." He generally will stay up during the night and I generally stay up until four or five to make sure nothing happens with/to him. Realistically, we don't feel he has much time left. We were talking with our neighbor about him today and I mentioned maybe five years and Vicky just shook her head no. I got to thinking and realized we had barely helped him squeak through the last four years but it feels like so much longer. This year really blindsided us. He got through basically all of 2007 without a problem for the first time in years and then all of a sudden, the bottom just dropped out. He has literally been on his death bed the last three times he's been in the hospital. Thank you for your thoughts Linda. That history is in a nutshell, the true tip of the iceberg. If I itemized everything it would turn out like War and Peace and that's just the last four to five years. Carolyn, we're not quite sure what type of set up he'll be using. They've got him on the one that has a series of wheels that rotates and kind of massages the liquid through the tube. They put a semi-permanent(As it was described to us) one in during his last stay in the hospital because he kept pulling the nasal type out and they couldn't maintain his nutrition. My sympathies to you and your husband as well as my thanks to him. I have two brothers that are also Vietnam vets and one had throat cancer seven years ago. I know it can be a difficult time and I hope you're both doing as well as possible. Shambo, that's basically his situation and they're still trying to pinpoint why he's having the swallowing issue although we're fairly sure it's mental. He started having an issue with it back in November when he stopped eating as much and we were reduced to giving him primarily soft foods and Glucerna, etc. When he had that ulcer, he bled out into his stomach quite a lot and his blood oxygen levels were the lowest his doctor had ever seen, 2.8. It stayed that way for hours so he wasn't getting normal oxygen levels in his brain as well. It's hard to tell with him because his mental state hasn't been "normal" for quite some time. His blood pressure stayed low at the same time as well as his heart rate. The time after that when he had the first UTI, they had trouble with his cardiac system again and actually ended up putting a pacemaker in. We do serve as his round the clock caregivers. I stay up until four or five or until he goes to sleep and she wakes up at six. I generally sleep until noon or so unless something happens with him and she needs help. We know that a nursing home is something that is almost inevitable, but if we can have him home, home is where he'll be. The only thing that will change that is if he falls into another cycle of illness like this year. If that happens, it isn't in his best interest to be here although we know he'll be unhappy away from home. We hope it doesn't come to that. Again, thank you all for your thoughts....See Morenew home: should I use a plumbing manifold and PEX tubing?
Comments (13)Ditto coffeehaus' statement re acidity and pin-hole leaks. I had that problem in MD and slowly replaced the copper with CPVC with glue & compression fittings. CPVC is a good product but PEX has become the product of choice. PEX-to-PEX fittings are crimped on and there are solderless fittings for PEX to copper & CPVC. Also, plumbing PEX is different than radiant heat PEX. I like the idea of ON/OFF control at the main feed. A manifold is required if tubing is run individually to each fixture (homerun method as shown in pic above) or connections are made using a hybrid of homerun and branch feeds. I would also plan for a little more distance from the electrical panel. I have not heard of any problems with mice chewing plastic lines and I live in the Adirondacks where there are lots of seasonal homes and summer camps....See Moreasolo
17 years agolast modified: 9 years agomikie_gw
17 years agolast modified: 9 years agoasolo
17 years agolast modified: 9 years agoConnie Kru
17 years agolast modified: 9 years agoasolo
17 years agolast modified: 9 years agoasolo
17 years agolast modified: 9 years agoskhan
17 years agolast modified: 9 years agoasolo
17 years agolast modified: 9 years agomikie_gw
17 years agolast modified: 9 years agoasolo
16 years agolast modified: 9 years agololitajunkin_yahoo_com
12 years agolast modified: 9 years agosushipup1
12 years agolast modified: 9 years agoKathy Boyd
6 years ago
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