Nora, Thanks so much for your response...I feel so fortunate to have so many people respond over the past 24 hours. Your idea of a styrofoam ball with yarn is fantastic. My mom knitted and crochet her entire life...learned while in school in 7th grade and actually did it for a living while raising me and my sisters. Now, I have bags full of yarn and I've tried to encourage her, but she won't (I realize now it's probably that she can't). But, if I get the styrofoam balls, maybe, just maybe I can get her interested in winding the yarn around them. I cannot tell you how much this forum has helped me already...For 4 1/2 months, I've been so frustrated with my mom constantly refusing everything I've tried to get her to do. At times, she seems completely fine, so clear headed that I lose sight of the fact that she's losing her mind and at times have actually argued with her!!! How ridiculous! I'm beginning to realize that it's not that she doesn't WANT to do anything, it's that she CAN"T, or is AFRAID that she can't. I can't even begin to imagine what it must be like for them...what are they thinking, what are they feeling? How frightening it must be for them. These are thoughts that I torture myself with. I so want to cure her and take care of her; all I can do is be there for her and let her know that I love her and will always be here for her. Every day, when I leave the house (I go to my main office for a few hours 3 days a week) she asks me "where are you going?" and every day, I say "I'm going to the office" and she says "be careful and make sure you come home" and I walk up to her, every day, give her a big hug and a kiss and I say "I will always come home, and I will always love you." I guess that is all I can do..let her know she is loved and truly cared for and that I won't let anything awful happen to her. Now that I've rambled on so....I do have a question, if anyone is even still reading this...How do you manage caring for your mom knowing that she doesn't have a clue who you are? It must just tear you apart.One more thing Nora...nine years is a long time...how was she through the majority of those years? Was she aggitated? Did she get along with her caregivers? Did she put up a fight about bathing?...I'm done for now....thanks again...you've been more help than you can ever imagine...my heart goes out to all of you for taking the time to respond to me and caring enough to do so....

Hi, my husband informed me that I should do a search engine simple search for "Dealing with husbands dementia" as he did it for me this morning. My father has been diagnosed with a SEVERE case of Dimentia, we don't know yet if they will label it with an Alzheimers tag. His behaviors are very much the same as the first lady in the string that we are replying to. He drives perfectly, obeying traffic lights, stop signs, etc, never getting close to the curb or swerving into traffic. He also knows where he is going, can take us to Kmart or the grocery store, drive to church, mother is sure that he could drive back to the old farmhouses that we used to live all of his life. Of course, mother is with him always when he is in the car, and thus far we have never seen signs that he doesn't know what he is doing. On with the show... Dad has a soft side and a mean side, with major anger issues. I have personally witnessed many many times in the past where he has hurt her physically, slapping her, knocking her across the head with his fist, poking her with his cane... ARGH!!!! and none of us kids can do anything about it because she doesn't want for us to confront him and "cause trouble"... He constantly bashes her mentally, verbally, controls every move that she makes, (trust me, I've been begging her for years to leave him while he was still at least had his mind with him but the threat was always there that he would kill her if she left him)... of course, she is the Christian woman that her mother raised her to be, and believes that SHE is the one who must care for him, and carry this burden alone. Her 4 adult children disagree, and are bringing her around to see our point of view slowly but surely (lord willing)... She does almost everything, offers to help bring in wood for the stove, shovel, etc.. he is 80 next month and she is 73 in April. She has all of her functions (besides having lost her right breast to cancer 6 years ago). Both have Hypertension, and both have diabetes type B. Oral meds. Dad's current condition. Yesterday, mother was to go to quilting circle at her church, a regular Wednesday morning meeting... He knew she was going to go, he is ok at the house himself, he does set a few things down and forget where they are, but it's mainly that he wants mother to run around after him (or so we think).. I guess he's trying to keep her out of trouble.. haha. In the morning, he was very agitated, and she offered not to go, when this happens, he starts yelling at her and telling her that she HAS to leave and go, and that he doesn't want her here, and doesn't want to talk to her, and that he is going to be gone.. "I'm LEAVING" and then will say something to the affect of and I'm just going to be GONE, meaning he is contemplating removing himself permanently from life. We the children have been telling mother that she is much faster than him, and if she would just stay a few feet away from him rather than trying to get close to him to calm him after he has said these things, that maybe she could try going in another room that he can still see her in, she would be THERE but not really THERE on top of him. I begged her 4 times to get back away from him and help me in the kitchen, but she said she saw in his eyes that he was contemplating something bad so she kept going back to him and apologizing for everything she did and everything under the sun to try to calm him down. Instead, he just becomes MORE agitated, and then he becomes aggressive. He said he was going to kill her, and himself, and then goes to stand and leave the room, but she tried to block him leaving, and he Shoved her out of the way. I was close by and saw everything, and since he got up aggressively, I anticipated that he was going for the gun. I called 911, but he heard me, and came out into the other room where I was calling from, and said I was next. Then he went outside, like he always does, and was messing around in the garage when the police came. 5 cars, 5 cops, all very nice, I told them to act friendly, and like there was not any problem, and see what happened, but know that he has always put down women, and he is buddies with all guys. (the brothers have it good....) The police came in, said he was talking, nicely, and not agitated, but that they couldn't understand anything he was saying. He speaks his own language. Like babies before they learn to talk, I had twins, who spoke their own language to each other but nobody could understand them. I'm home from Colorado for this exact reason. I've been staying in their guest room 2 doors down from them for almost every night and day for the past little over a month. My younger brother who is a tremendous help to them, and lives only a few minutes from town is available for her to call, and can get to her within less than 30 minutes if called in a panic. I did not feel it right for me to return home until my brother returns from Atlanta and is able to assist again. He needs only come over and visit with dad for sometimes a few minutes to often times several hours. I don't feel mother is safe without someone being able to get her quickly. The police were told of the threats, and said that because there is also a weapon in the home and was used as part of the threat (though he never went to go get it in his hand) that they automatically must take the person in question to the hospital for an evaluation for a minimum of 2 days. They gave us the option of going and signing temporary committal papers so that they could get him placed in a hospital. Mother said no immediately, but the police officer said if they find that he needs to be checked out and evaluated, that the doctor and nurse would sign the papers for us, so we could agree, or agree to disagree, but he was going. The hospital worked fervently to find a place for him, but we had 6 No answers before someone accepted him 3 hours away, and 4 hours after arriving there. Every time mother and I or either one of us alone would enter the room, he would become immediately agitated, shoots daggers with his eyes, (well, she's unhappy that I just said that, so I told her I would say giving her the stink eye instead..) at least I got a laugh out of her just now.. MISSION ACCOMPLISHED :) So far he has been most excellent to all health care providers and police, and has caused no negative issues or comments from any of them. Today, the doctor called who is over him during this stay, and told us of the SEVERE Dimentia diagnosis. She said not even mild or moderate, but she needed to inform us of the SEVERITY of the situation. Mother freaked and started crying right away, she said "I WANT HIM HERE"... and our goal is to actually just see if they can mess with his medications a little so that he can have relief from some of his symptoms, but not be in a completely vegetative state where her work with him is even harder than it's always been. We also have discovered in talking and comparing notes, that he has been experiencing symptoms a little at a time over probably 2 to 4 years before the past 2 years, but the past 2 years have been the biggest problem. Mother retired from her job and stays home with him now.. that just brought a break through, and we figured out that he has been unhappy with her working the whole 6 years she was at her job she had problems with leaving for work because of him. Dad's mother was always kind of crazy... She had a horrible case of dementia as well, and suffered for over 10 years with it never knowing any of our names, and always thinking that she needed to pack to go "HOME" which would have been her childhood home, not the home she was in prior to living with them here. Grandma was violent enough that she could throw mother down the stairs, and she was 88. I have great patience for older people, and those suffering from mental illnesses, but I don't do well with violence, as I came from an abusive marriage before my current. We were told today by the doctor that he would HAVE to quit driving to come home, and she asked what kind of thing does he do around the house. Since he was always a TV repair man, and a Farmer all of his life, those are the things that he knows the best, and can do without thinking about them. She said it's his long term memory working in the background, but that he is not actually capable of KNOWING full well what he is doing and being able to do it. I told her that I believe he is perfectly capable of driving a car wherever, but that driving requires dexterity and mobility and flexibility, none of which he possesses. He has bad problems with arthritis, his hands and feet swell because of diabetes, and he has no feeling in 2 of his fingers on both hands & feet because of the diabetic nerve pain as well as frost bite over the many years. When he gets a little warmer after coming inside from shoveling, his nerves shoot pain as they warm (I have it too from delivering mail for 9 years) but the pain always comes, and is constant. I always refer to it as feeling as if your hands and feet and face are being held over a raging fire 24 x 7 x 365. This is a MAJOR CONCERN. Because dad doesn't vocalize well, he does talk about a great many subjects, but nobody understands what he is saying and can follow along, or what he is talking about at all, unless they have spent all day every day with him, knowing the things that go on in his life day to day so they can follow and TRY to decipher what he is saying. If we don't agree with him, or understand him, he becomes immediately agitated and then just starts saying the same thing over and over and over again, giving hand gestures, and trying in his best way to describe what he just said, but we are STUPID and EVIL and HORRIBLE and mother was never so bad up until 3 years ago when she suddenly became this terrible person he says she is. (which she ISNT)... As I said before, he does have a good side, and many times quite a few days since I have been here in the past month, I have witnessed lots and LOTS of words of kindness maybe not directly to her all of the time, but to me, in front of her about her what a good woman she is, and a great wife, and he really has a good one (he says).. Mother's definition of abuse is much different than mine. As well as her definition of suicidal tendencies. She told the nurses in the ER that he is only suicidal maybe once every 2 weeks, but I have witnessed many comments that were talking of killing himself approximately 3 times a week every week I've been here. I told her that they cannot help him unless they know the truth, and they need to know the true answers. I told them twice a week, sometimes more. Doc says he has to have all saws, and anything else dangerous in the house that he could get harmed with even by accident. Obviously that doesn't mean he has to live in a padded cell, but that obvious things that he shouldn't be doing anymore must be dealt with before she will allow him to come home. Mother is devastated, and is already worried about the way he will behave once he is home, but now we also have to deal with the issue of no driving and no saws and no chain saws, etc.. He will be livid. My brother won't yet be home and it will be mother and I to save ourselves. I do NOT recommend lying to your husband if you are still reading, and telling him that the State wants to take his license. Though the doctor is telling you he doesn't need to be driving anymore, have the doctor be the "Fall Guy".. they will be more than willing to break the bad news so that YOU are not the target. This doctor offered before I asked. I said we need to talk about it, and try to wrap mother's head around the idea before they start giving him restrictions. He hasn't made a fuss for them yet, but we're kind of afraid for what could happen as we know he is capable of causing a problem. We don't want him to have a heart attack in the meantime, and we want him at home to care for, as that's what our families have all done for each other (unless someone breaks a hip or something and cannot have them at home)... She slept last night from 9 to 7 am straight through, the best she has slept in years. AS you can imagine, that caused problems first thing this morning for her, she felt guilty for being able to sleep at all let alone sleep the whole night. She feels that she has FAILED her husband, and my remark to that statement is that what she is doing now by getting him the help that he needs is what "taking care of him" is all about... if she had NOT aided in getting him this care, THEN she would have failed him. Over and out for now... Signed, Longwinded from Iowa Good luck everyone, please keep pouring your hearts out to everyone who will listen. Take the good advice, leave what doesn't pertain to you, and lean on others. Look for your 5 most important people and make them your prayer partners, start prayer chains, let others be aware of your feelings, take care of YOU so that you can take care of them (my hubby had a traumatic brain injury a couple years ago and was hospitalized for exactly a month losing 48 lbs in 3 weeks because he wouldn't eat or do anything for anyone) he would have been institutionalized but I cried over him and he came out of his state a couple of times. I told him what they were planning for him and he FINALLY started coming around. But only when I was broken down over his lap and for short times (but it opened the door to healing)

One of the better choices is a CCRC where the facility is licensed for both asst. living AND nursing/critical care. That way you don't to move the elderly to two different facilities. The older they are, the more stressful it is to move them around. We are currently in the process of getting my MIL admitted to an Asst. Living/Nursing care facility. In her case, and I would expect this is true of most of these places that have both types of units, it is the FACILITY who decides whether an applicant can go into Asst. Living or needs Nursing care, not the family. The paperwork included financial disclosures of assets, her doctor's assessment of mental & physical condition/history, and a current TB test, in addition to the facility's own medical assessment after a 1-hr interview. Most families vastly over-estimate the ability of frail seniors to live on their own. The average stay in AL is only two years, on average. Considering that during our many visits to the specific care facility we want to use for MIL, where we have met a number of AL residents who have been there 5+ years, that means there are a whole lot of elderly being admitted into AL units in this country who aren't even making that 1-yr anniversary before needing critical or nursing care transfers. Generally at the AL level, there are charges for additional care needs. At the facility we are using, there are 3 levels of additional care, which the facility determines based on how much help a resident needs on a daily basis. So the basic rental cost for a studio with 1/2 bath - all showers and baths are scheduled and done with full escort service (but in AL assumes no need to help with hygiene, just in/out) is $3875/mo. This covers the unit the resident lives in, the daily housekeeping and all maintenance, basic TV service, 3 meals a day (in some places it's 2 meals per day), and all scheduled activities and outings. Now come the extras. The following is NOT a complete or absolute list, it's only to indicate how one local facility determines care levels and thus the monthly costs per resident: Level 1 care is minimal - help with medications only - adds $900/mo. Level 2 care is probably where MIL lands: help with medication, occasional regular escort to/from classes, adds $1340/mo. Level 3 care classifies complex medications (needed more than 2x daily), mandatory check-ins by staff at scheduled times, full-time escort whenever out of their unit, adds $1785/mo. If you are in AL and paying for Level 3 care, you are paying exactly what it costs to be in the memory care or nursing care units. Some residents do this because they don't want to move into a new unit on another floor. The critical care units are always temporary stays, where the resident keeps their usual unit, as critical care is considered convalescence (not serious enough for hospital care, but too serious to be in a standard residential unit). It's used for residents who are recovering from illnesses or surgery or accidents, who need more care than just a pair of crutches and an occasional look-in. YMMV on the facilities near you, but hope this helps clear up what it can mean to move into a full-care senior facility. These, btw, are non-profit organization prices. We found that there was little difference between the prices on AL in profit vs non-profit facilities - in fact, the for-profit places were generally lower. But the moment a resident needs critical, memory, or nursing care, for-profit facilities were much higher cost than the non-profit facilities. We looked at seven different facilities near us - there are more, but my MIL has dementia so we restricted our search to facilities with memory care units. HTH others.

Wood - Glad you are enjoying the wonderful "Child/Forest" book. My library has the prettiest edition of this, and I donated the other two in the trilogy, but have a strong feeling they went into the FoL book sale instead of on the shelves which I had intended to make up the trilogy for other people. As for the adding of the "-ie" sound to words in English, that is quite common even now. "Brekkies" - breakfast "Sarnies" - sandwiches "Prezzies" - presents/gifts Also, there used to be a penchant for reducing some names to "-az" such as: Sharon --> Shaz or Shazzer Barry --> Baz or Bazzer Des --> Dezzie This might just be my group of friends though... We had a mixed bunch (social class speaking) and I think this shortening was a lower class trend... I could be mistaken as it may vary in other regions...