Book of the Week

stacey_mbMay 16, 2013

Still Alice : a novel / Lisa Genova.

I just loved this novel when I first read it and I enjoyed it just as much on reading it recently for a second time. Although sad, it is an interesting portrait of a particular individual and is informative about an important subject that affects thousands of people, either directly or indirectly. Despite the subject, the book is not written in a depressing or melodramatic way.

Dr. Alice Rowland is a 50 year old professor of psychology at Harvard University and is a leading scholar in the study of the mechanisms of language. This book traces her life each month beginning in September 2003 and ending in September 2005. Alice has recently been having problems with her memory and is concerned at becoming lost in a familiar area, forgetting the topic of the lecture she is about to deliver and introducing herself to a woman at a party to whom she had just been introduced. She consults a doctor and specialists and in January 2004 is diagnosed with early-onset Alzheimer’s Disease. It is called early-onset because of her unusually young age in developing the disease.

From the information she has received from doctors, Alice finds out about the symptoms of Alzheimer’s and of the various stages of the disease from the beginning hints of a problem to its final stages. She visits a care home for people with the disease under the guise of finding a location for her mother and sees the condition of the residents. Alice also receives genetic testing to find out whether she has genetic mutations that predispose her to Alzheimer’s and finds she tests positive. This affects her three grown children, who want to know whether they have inherited the mutation.

Alice and her husband, a scientist, are determined to be proactive and prevent the disease from progressing any further. They agree that Alice should start taking a course of medication, including becoming enrolled in a drug trial. In May 2004 Alice enters a set of questions on her BlackBerry that she is to answer each day and if she is unable to, she is to open her computer file named “Butterfly” and follow the instructions. The questions are: What month is it? Where do you live? Where is your office? When is Anna’s [her daughter] birthday? How many children do you have? Her answers change month by month as her condition progresses and eventually she opens the “Butterfly” file, but this sequence doesn’t progress the way that Alice had expected it would when she first composed the questions.

The author is well qualified to write a book on this topic. She holds a Ph.D. in neuroscience from Harvard University and is an online columnist for the National Alzheimer’s Association. This book has been endorsed by the National Alzheimer’s Association.

What is particularly interesting about the novel is the way in which we see Alice’s condition as seen through her eyes, including the symptoms she experiences, how the disease affects her life and how her family reacts to it. Some of her experiences are sad, such as receiving mostly negative feedback from her students and having to resign her position as professor. Some experiences are, it has to be said, humiliating. One day, returning from a run, she decides to make tea and puts the kettle on the stove to boil. But she can’t understand why the dishes are not in their usual locations in the cupboards so she empties all the cupboards as a start to re-organizing. Her neighbor comes into the kitchen and Alice finds out that she is in the neighbor’s house.

There are many questions that arise out of this story and many concern her family. Does her family behave in a reasonable way to her diagnosis? Would it help them to know if they have the genetic mutation for Alzheimer’s? Should her family put their own lives on hold for Alice? Could it be said that her husband abandons her at the end of the novel?

From a Boston Globe review: “After I read Still Alice, I wanted to stand up and tell a train full of strangers, ‘You have to get this book.’ “

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heather_on

I read this book a couple of times now and I highly recommend it too.

    Bookmark   May 16, 2013 at 1:01PM
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marilyn_c

Stacy, I want to thank you for your book recommendations. I have made a list of them, because when I am looking for a good book to read, I never can think of the ones that others are talking about. I don't read as much as I should....on the go a lot and sometimes when I sit down to read, I fall asleep, but the books you suggest all sound so good....I just wanted to thank you.

    Bookmark   May 16, 2013 at 1:15PM
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casey_nfld

I loved this book! Also another one she wrote, "Left Neglected". She has a new one that my sister-in-law is now reading and I'll read when she's finished, "Love Anthony" about a boy with autism.

    Bookmark   May 16, 2013 at 1:51PM
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stacey_mb

Thank you to Heather, Marilyn and Casey for your comments. Heather and Casey - I hesitated to read this book for a while because I thought it might be depressing. But it isn't depressing at all! Casey - I will have to watch out for Genova's other books, and let us know what you think of Love Anthony. Marilyn - I'm all too happy to add to peoples' reading lists! I hope you enjoy the books as much as I did.

    Bookmark   May 16, 2013 at 2:26PM
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FlamingO in AR

I appreciate book recommendations a lot, it's always great to find out about new authors, or ones I've not heard about yet, so thanks for that, Stacey.

I like to go into a book "blind", though, without knowing too much about the plot or the characters, so I really like the "what are you reading?" posts as I can get lots of reading suggestions and I won't feel like I've already read a good portion of the book before I even crack open the cover. ;) A few lines or a paragraph about a book is usually enough to entice me without giving me too much information. I like to form my own opinions about the people and circumstances in the book without having suggestions planted in my beady little brain. LOL

    Bookmark   May 16, 2013 at 3:46PM
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vannie

I read it, and my mother had Alz. I'd never read anything from the patients point of view. I didn't find it depressing--it's reality, and though that can be depressing, it's a fact. That's how Alz's works. It's a terrible way to go.

    Bookmark   May 16, 2013 at 5:07PM
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pam_25f

Stacey, Your commentaries are so good. Still Alice sounds fascinating.

    Bookmark   May 16, 2013 at 5:11PM
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stacey_mb

Thank you, Flamingo, Vannie and Pam for your comments. I agree, Flamingo, that the "what are you reading" threads are very helpful for book recommendations and I have gotten some great reading suggestions that way. Do you ever go to the reading forum on Gardenweb? The people posting on that forum mention what they are reading, but generally aren't really descriptive about the books.
Vannie - it's sad that your mother had Alzheimer's. My mother suffered from dementia in her later years, unfortunately, which changed her quality of life.
Pam - thank you for your lovely comments. My purpose in posting these book commentaries is to share my love of reading with others.

    Bookmark   May 16, 2013 at 7:54PM
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heather_on

Stacey I think you and I must have the same taste in books. Two of my all time favourite books are really old books now, but have you ever read Karen and With Love from Karen by Marie Killilea?

    Bookmark   May 16, 2013 at 10:15PM
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stacey_mb

Heather, some books that I read are also oldies but goodies! In fact - sneak preview alert - I plan to feature Anne of Green Gables in one of my book reviews. Thank you for the book recommendations. I haven't read them but will definitely investigate since I'm always looking for new reading material.

    Bookmark   May 16, 2013 at 11:04PM
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pam_25f

Heather, I read and reread Karen and With Love from Karen many times. I admired the family's great faith and stamina. I am still amazed at Gloria's long wait for marriage.

    Bookmark   May 17, 2013 at 8:12AM
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FlamingO in AR

I haven't needed to go there for recommendations yet, Stacey, as I don't have as much time to read (or sew) these days, as I'm spending a lot of time over at my parents' house or driving them to doctor appts. Mum is suffering from Parkinsonism and some dementia, coincidentally to your book review.

But thanks for the suggestion. :)

    Bookmark   May 17, 2013 at 1:28PM
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