Polymyalgia problem

ivamaeOctober 20, 2008

I was diagnosed with PMR in June 2007 and put on 20 mg of prednsione and have been slowly reducing the med according to instruction

I contacted my rheumatologist a couple of weeks ago. I was to lower my pred from 2mg to 1 mg but I felt that something wasn't right as I had pain in several areas, but not too bad. they increased my dosage to 4 mg. Last week I had a couple of days that I felt great and then Friday afternoon, while getting up off the chesterfield I had a very sharp pain in my lower back - not right on the spine. I could hardly move. This went on to my inner thighs, across my shoulders and around my left shoulder blade. I have had sore shins for a couple of months. This became worse too. By Saturday morning when I tried to get up, I had a rough time and I couldn't get dressed. I managed to pull on a house coat and shoes and a couple of hours later called the ambulance to go to emerg. They feel that it is all pmr related and upped the pred to 6mg and told me to call my rheumy's office this morning and get an appointment as quickly as I can. It is some better but certainly a long way from what it was. I got an appointment for Wednesday and told if it gets worse to call them back.

What brings on a flare up? Is it because of something I did? My son feels I do too much. I feel I do very little and don't do anything I don't feel up to doing. I lie down in the morning for at least an hour and 2 in the afternoon. I spend time at the computer and while sitting, do a lot of knitting etc. for the homeless. the Rheumy O.K.d the knitting.

I do meet with small goups of friends as often as possible as I feel I need some contact with the outside world.

I expect he will raise the pred some more. I won't like that but I sure don't like this, either.

I'm 78.

What do you suggest? What has been your experience with flare ups. I'm afraid if I just sat around all day that before long I wouldn't be able to do anything


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Hi Ivamae,
I'm really sorry no one has answered your question. I'm guessing no one here has that problem. Are you feeling any better? I think Fall is hard on all of us with chronic illnesses. I have Fibromyalgia, and seem to have set-backs every Fall.
I use a heating pad alot. How are you doing now?

    Bookmark   November 16, 2008 at 6:46PM
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Thanks for inquiring.

I had my appointment and he is questioning his original diagnosis as he says I do not fit the complete pattern. neither am I following the expected prednisone results. However, he can't figure it out. He has put me on 5 mg of prednisone for 3 months and has also added another drug, which he says may/maynot help and won't know for 2 or 3 months. I understand it is a drug used for lupus and rheumatoid arthritis.

I am feeling much better but now have developed a cough that is coming from my boots, almost. I tried to get an appoinment with my family Dr. but couldn't get in for 5 days so went to the walk-in-clinic. I have a history, since childhood of bronchits and phneumonia, so a 5 day wait wasn't a good idea. The appoinemnt for the GP is to-morrow and as I still have the cough I am going to keep it. The Dr. at the walk-in-clinic said it could be from alergies, which also flared up, or it could be a virus. I'm thinking it is probably a bit of both, as it didn't go away with antihistamines.

I do really appreciate you asking.

I'm not familiar with fibromyalgia, but undersand it is very unpleasant as well.


    Bookmark   November 16, 2008 at 7:46PM
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Hi ivamae,
What are your symptoms?

    Bookmark   November 16, 2008 at 8:14PM
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I'm not sure if you are inquiring about the cough or the PMR.

I had the appointment this morning and he says it is a virus and some bronchitis. That will take time to get rid of but I've had it many times before but usually the bronchitis has been a bacterial infection as well.

The PMR started off with all food having a terrible taste and then extreme exhaustion . From that it went into weird sensations that started at the buttocks and slowly went down to the ankles. This would happen every time I got up and went to walk. I couldn't take a step until this feeling reached my ankles. From that it got to the point where I had to pull myself up the steps, etc. etc. Prednisone gave relief in just a few hours. When it flared up this time, the pain was in the shins, not the back of the legs and around my shoulders, arms, one spot in spine area, etc. It is a weird thing.

It is too difficult to get into the tub, so have to use a bath chair. I miss my long tub baths so much. My balance is bad so am using a walker when outside.

Thank you for your replies.

    Bookmark   November 17, 2008 at 4:32PM
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I'm sorry for all your pain ivamae. I hope you feel better soon! I'll send good thoughts your way!

    Bookmark   November 17, 2008 at 8:31PM
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