Primary Lateral Sclerosis - help!

bamasueOctober 10, 2006

My DH has been diagnosed with PLS. It is a thankfully rare neuromuscular disease but therein also lies the problem of finding a lot of information about it and its anticipated progression. Would certainly like to find anyone to talk to who has any firsthand knowledge of it. So, I'm throwing my hopes out to any of you!

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agnespuffin

Do a google search for: Forum for primary lateral sclerosis.

there are a lot of imformation sites plus a couple for support groups.

    Bookmark   October 10, 2006 at 2:04PM
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bamasue

Thank you! I believe I have found exactly where I need to be. Just still not thinking real clearly about all of this.

    Bookmark   October 15, 2006 at 12:23PM
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