Myasthenis Gravis anyone?

ruthannAugust 3, 2013

I did a search and nothing came up. I'm surprised. I may have it. The neuro-opthalmologist says the symptoms say yes, the tests say no. Now, I also have cancer and chemo, so he says to 'wait and see'. Both eyes have double vision on the sides. Is anyone familiar with this? Very frustrating. Ruth Ann

Thank you for reporting this comment. Undo
emma

Do you by any chance take meds for chloresteral? They can cripple you. That happened to my neighbor and by the time he found another doctor it was to late to regain muscle strength.

    Bookmark   August 8, 2013 at 10:30AM
Thank you for reporting this comment. Undo
OrchidOCD

My mother has been diagnosed with myasthenia gravis for 29 years (she's now 66) and I remember it being a 3 year ordeal for her before she was correctly diagnosed! Grrr!!! Her earliest symptoms were extreme fatigue from normal activities, chronic shortness of breath and muscle weakness from normal exertion, double vision, etc. I don't know if this disease is still as misdiagnosed as it was back then, but you may want to find a neuro who specializes in myasthenia - I know from my mom's case that the correct diagnosis and treatment is crucial for long-term prognosis. The very best of luck to you - my mom's proof that this can be a manageable disease that still allows a high quality of life, and I hope your case will be proof of that too! Many hugs!

    Bookmark   August 17, 2013 at 9:48PM
Sign Up to comment
More Discussions
Vitamin D makes my hip ache.....
Has anyone had this to happen? When I try to research...
lovemrmewey
Does anyone else have a problem with Dental X-Rays?
I am wondering if it's just me or if anyone else has...
Judith
Anyone heard of Ageless Xtra?
Hi everyone, I usually post and lunk on the decorating...
customdecorator
Hydration cubes
Has anyone tried the Bezwecken hydration cubes for...
texasone
shingles
i've been told if i don't move around so much that...
brightmoregirl
© 2015 Houzz Inc. Houzz® The new way to design your home™