Please tell me how you cope..And what treatments you do. What helps and what kind of meds do you use?
I was just diagnosed myself about 6 weeks ago. I'm finding it pretty hard to cope, personally. The long list of food I can't have is so much longer than what I can have, that it's really depressing. I miss chocolate :(
The medications I'm taking:
- Proced twice a day (helps with the irritation)
- cystoprotek -- 2 pills 2 times a day
- Amitriptylin - 10mg once a day
Overall, my frequency has vastly improved with the change in diet and with the meds. I still have a lot of irritation/pain when peeing, but I'm hoping that time will improve that. I have a hard time strictly staying on the diet, which probably doesn't help.
The things I have found to help me cope are finding foods that I can still eat, that I enjoy. Peanut butter, for example, makes me very happy ;) I also use cream cheese a lot for things -- white sauce for home made pizza, a mayonnaise substitute (mix with a little milk and microwave), pasta sauce, etc.
If you haven't checked out the forums at ic-network.com yet, I highly advise it. Lots of helpful people there.