spasmodic torticollis

lillykayJanuary 9, 2008

does anyone have or heard of spasmodic torticollis ? I`ve been taking botox shots for about 5 years and was wondering if anyone else has heard of it?

Thank you for reporting this comment. Undo
agnespuffin

I had not heard of it before, but after reading about it on some sites, I realized that I have known people that had it. I just didn't know what it was called.

Have you done a google search yet? There are tons of information on this condition.

    Bookmark   January 10, 2008 at 8:24AM
Thank you for reporting this comment. Undo
lillykay

Well agnespuffin
I have researched it and it is very rare, my Dr. told me it was nothing that you inheirit but they dont know what causes it .he said it was deep in the middle of the brain so they have know why of noing what causes it ...I told him they could have my brain when I died and he said ok ...lol its not a fun thing to have but i live with it ,

    Bookmark   January 10, 2008 at 2:13PM
Thank you for reporting this comment. Undo
lydia1959

I haven't heard of it, but as a person with a rare skin disorder I find talking to others with the disease is very helpful. Here is a link to a forum you can join to chat with others that have ST.

Here is a link that might be useful: Torticollis Forum

    Bookmark   January 11, 2008 at 2:46PM
Thank you for reporting this comment. Undo
lillykay

thank you lydia1959
thats very nice of you , thanks again

    Bookmark   January 13, 2008 at 9:46AM
Sign Up to comment
More Discussions
Tennis Elbow
Was just dx with a tennis elbow...Besides taking the...
anicee
Suggest a remedy for chapped hand and breaking of nails
I am a working lady and my work is mostly on computer....
kalifa
Right side chest pain only at night when sleeping
Hi Everyone, I've done some research, and have found...
SconsinKid
Hydration cubes
Has anyone tried the Bezwecken hydration cubes for...
texasone
tough skin on feet
I have been to foot doc.and they say rhey don't know...
goldy
© 2015 Houzz Inc. Houzz® The new way to design your home™