Thank you for your kind thoughts!
Ok, I've been home for a few days now. I wanted to escape my reality for a bit and this forum is a great way to get mentally lost in anything not related to leukemia. However, i wanted to say thanks. While I was in the hospital, my sister in law relayed your well wishes. Thank you so much. I was very touched by the kindness.
February is off to a pretty rough start for me. The only word that comes to mind is devastating. I am an athlete and fighter by nature. It's so hard to wait and do nothing ( not entirely true as m on a low dose oral chemo to slow the disease progression aka buying some time). Yet that is exactly what I'm doing. After consulting with several doctors at several cancer centers we believe it's better to let my kidneys, liver and lungs heal some more before we try a harsher salvage regimen. Ideally they would like to have found a match before we start the salvage chemo. The first two days home from the hospital was all about my son. I try to shelter him from my disease as much as possible. However yesterday his grandma took him for the day. I'm not going to lie I spent about 6 hours throwing myself a pity party; but Today is better. I'm more hopeful.
On a happier note, my husband has decided to take some vacation days early this year. I started a thread asking for travel ideas -- please pop over into that thread help me decide where to go!
This post was edited by iheartgiantschnauzer on Fri, Feb 21, 14 at 16:20