Reporting back.

caflowerluverMarch 14, 2012

I just got back from the doctor's office. It is a mix of good and bad. He showed me the scans of the MRI and what it shows is inconclusive. He went over it slice by slice. (I guess that is why he wanted to discuss it in the office instead of an email.) No tumors or major strokes, which is good. I do have more white spots than is normal for someone my age, but you do get them when you age. It might have been caused by unnoticeable mini strokes but hard to say since I didn't have any symptoms of any kind of stroke.

So the only thing it could be is the beginning of Parkinson's. I have to go back to get checked over again between 4-6 months to see if there is any progression of the disease. Unless the tremors get very bad, he suggests I do not take the medication for the symptoms until I really need to take it. So basically just live with it.

Thanks again for all your good wishes, thoughts and prayers.

Clare

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publickman

Glad to hear it is not worse, but I'm sure you will be somewhat anxious about the results in 4-6 months. I will continue to keep you in my thoughts.

Lars

    Bookmark   March 14, 2012 at 7:20PM
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caflowerluver

Lars - Thanks. I know the news wasn't going to be good news but I guess it is the lesser of evils.
Clare

    Bookmark   March 14, 2012 at 7:38PM
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centralcacyclist

I'm sorry to hear the news.

Eileen

    Bookmark   March 14, 2012 at 7:51PM
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dedtired

I don't know whether to be happy or not. I guess I'll be happy that maybe things won't be so bad. I'm very happy it's not a malignant tumor!

Keep the faith.

    Bookmark   March 14, 2012 at 8:13PM
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sushipup1

Oh, Clare, that must have been trying for you. And the next 6 months will probably stretch out, too. Our next lunch, whenever you're ready, we'll have that Margarita with our chips and salsa!

    Bookmark   March 14, 2012 at 8:25PM
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annie1992

Oh dear, Clare, I guess that's better than a malignant brain tumor or a stroke, but still not good.

I think "wait and see" is much harder than doing something. (sigh)

I'll be hoping that there is no progression of symptoms and that nothing gets any worse.

Annie

    Bookmark   March 14, 2012 at 10:57PM
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lindac

sorry....I was voting for a stroke....which is over and obviously caused minimal damage.
If the doctor you are seeing is not a neurologist....get a referral and take you pictures to him.

    Bookmark   March 15, 2012 at 12:10AM
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caflowerluver

The doctor is a neurologist/neurological surgeon, so I think he knows his stuff. Like I said before - it's a mix, not the best news but not the worst either. Just have to wait and see.

Thanks everyone for your support.
Clare

    Bookmark   March 15, 2012 at 12:45AM
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Gina_W

So was the diagnosis from process of elimination? At any rate, would you email me through gardenweb? My email here works, and I have some info that may or may not interest you.

    Bookmark   March 15, 2012 at 12:03PM
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caflowerluver

gina-w - Afraid I couldn't send you an email through gardenweb. I tried but the email page didn't come up. You can send me one - I hope. Liked your blog. I also have a weiner dog with a punim! Sometimes I just stare at her face for the longest time. Best cure for whatever ails you.
Clare

    Bookmark   March 15, 2012 at 1:56PM
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rob333

(((Clare))) Wish it was the best news for you. Keep us updated. You're in my thoughts.

-Robin

    Bookmark   March 15, 2012 at 2:06PM
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kathleenca

Clare, I hope the caring and support of your family and all your friends help ease this trying time. We are all sending good wishes and pulling for you.

Kathleen

    Bookmark   March 15, 2012 at 6:18PM
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trixietx

Thinking of you! My Dad had Parkinson's. If affected his mind and his balance. He never had a tremor.

You are in my thoughts and prayers!

    Bookmark   March 15, 2012 at 6:46PM
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caflowerluver

Thanks again everyone for your kind words and thinking of me. I am hanging in there. I must admit I am going through a roller coaster of emotions right now. I am still adjusting to the news.
Clare

    Bookmark   March 16, 2012 at 12:06PM
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doucanoe

Clare, I was really hoping for an "all clear", but at least Parkinson's is treatable. Wishing you all the best.

Linda

    Bookmark   March 16, 2012 at 3:57PM
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coconut_nj

Clare, I'm sure sorry you have had to deal with this and now are somewhat in limbo. If only you really could just ignore it until the 4 to 6 month checkups. Here's to hoping any progression is extremely slow and responds well to any future treatments/medication.

    Bookmark   March 16, 2012 at 4:44PM
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sally2_gw

Clare, I've read this post before, but I bet I didn't have time to say anything then, because I don't see where I've posted. I thought I did.

Anyway, I've been thinking a lot about you, and wish the news was better, that they found something they could cure easily. Maybe the good news is that Parkinsons is getting so much attention now with famous people bringing it to the forefront. There's lots of research going into it. I bet there's improvements in the treatment happening all the time. I'll keep thinking of you.

Sally

    Bookmark   March 17, 2012 at 7:47PM
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caflowerluver

Thanks everyone for your well wishes. Such a great bunch of people on this forum. Like I said before, I am still in the adjustment phase and probably will be for awhile. But I am not going to just curl up in a ball. I have planted my Spring veggie garden, bought 4 new roses to revitalize my rose bed and trying new recipes. I still have a million things I want to do! LOL
Clare

    Bookmark   March 18, 2012 at 1:45PM
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annie1992

Clare, I was just thinking of you. I like your attitude, I think that will help a lot in dealing with this.

A million things? Sounds like you have a good start, LOL.

Annie

    Bookmark   March 23, 2012 at 6:50PM
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caflowerluver

Thanks Annie! Actually it is a million and one. LOL
Clare

    Bookmark   March 31, 2012 at 8:21PM
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Bizzo

Clare - thinking of you!

    Bookmark   April 3, 2012 at 3:16PM
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caflowerluver

bizzo - Thanks, that is very kind of you.

And thanks to everyone else who has kept me in their thoughts and has sent me good wishes. I just take it one day at a time.
Clare

    Bookmark   April 5, 2012 at 1:48PM
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compumom

You're going to be our inspiration!

    Bookmark   April 6, 2012 at 12:55PM
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caflowerluver

compumom - Thanks. I will try to be.
Clare

    Bookmark   April 10, 2012 at 6:30PM
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