When a doctor goes against patient's wishes...
Here is the background. My 24-year-old is in a nursing home because her diabetes was out of control and she has another illness, gastroparesis which needed a plan to keep her out of the hospital. A year ago, her doctor at that time recommended she get feeding tubes so that she could get nutrition on her throwing up days and also to give her medications in. Her disease is such that she is at 20% digestion instead of a normal person's 80%. She also lives with constant nausea and has pain in her abdomen. To add to this, she is a very brittle diabetic and pain or stress cause her blood sugars to go up to the 400 range.
Now to the point of my post. Her doctor does not do hospital or nursing home visits. So, she has a new doctor who seemed genuinely caring. When this new doctor told DD that he thought she didn't need the feeding tubes, DD explained to him that she did because of not knowing which days the medications wouldn't digest properly thus causing an overdose when she'd take the next ones hours later when, by chance, everything digested. Also, there are days she can't eat and needs them for nutrition.
A week after this discussion, the doctor decided to not give her medications by using the feeding tube. She must take them by mouth. So, her blood sugars which had been getting better are now back in the 400's and she is in constant pain.
The doctor won't change his plan and let her take these same medications by tube.
Another thing is that 1 week ago, she had a very low blood sugar and dropped quickly. This caused her to have a seizure and she is still shaking on her right side. The doctor told DD that if she felt the need to have this checked out at the ER, he would not accept her back as a patient. Mind you, he's never even examined her after this happened. Two days after this happened, he changed the way of her getting her medications. This is a lot of stress on her body.
Does she have any rights at all? We live in a very small town and there are few doctors, less who will take her on as a patient because she needs pain meds and they don't understand her illnessess.